49yo - Just diagnosed with Stage 3 DLBCL

Former Member
Former Member
  • 127 replies
  • 9 subscribers
  • 22495 views

Hi all,

It's 3rd June, and after being told last night I definitely have DLBCL after a Biopsy last Tues, I'm going to be signing the consent form tomorrow and starting the R-CHOP Chemo on Monday.

Whilst there has been worry and fear from those around me, I feel unnaturally calm. I've had a *huge* lump under my arm since the end of February, and frankly getting a clear diagnosis and plan is more of a relief than anything else....

I also wonder if my long-term (low dosage) of Sertraline may of course be stopping any gnashing of teeth and wailing?

I'm also in a very lucky position that I can work flexible hours with no pressing time constraints - which must help?

I've decided to keep a diary of what meds + effects I have on a daily basis, as I think that will give me a clear view of progress (and even being on Prednisolone for a few days is providing massive relief already)

Anyway - I'll post here with any comments or questions as life takes a small diversion for the next 6 months or so.

Cheers everyone,

DengieBloke (somewhere in the Essex Marshes!)

  • Hi Paul

    Wow, what a beautiful pup! Absolutely stunning, love love love.

    I really hope today is going well. Are you ringing a bell??!?? Does anyone actually do that??

    I think you’re being really sensible about being cautious around people. This is something I think I need to take more seriously. I tend to wander around as if there is nothing wrong with me (still think I’m in denial over the whole cancer thing).

    Anyway, keep in touch and let us know how things go.

    Sending you lots of positivity.

    Sarah x

  • Former Member
    Former Member in reply to Sassy1234

    No need to apologise! I hate the bloody steroids for that same reason. Just so glad you’re back on track. I don’t know about you but sleep has always been easy for me so night after night of not good sleep does take a toll. Sunday sounded lovely.I’m a bit paranoid as in week 2 of cycle- so pretty much on lockdown although a mate did a doorstep visit with flowers last night. Really touching. I’m eating well which is a blessing - no nausea this cycle. Bit of pain and fluttering and neuropathy but managing to do a reasonable day’s work this week.

    Thankyou so much for your reply

    Gill x

  • Former Member
    Former Member in reply to Sassy1234

    Hi Sarah, 

    Felt like I'd been run over today, but feeling a bit better now. I wondered about the 'bell' too, but given that I have to wait 5 weeks and then have a PET scan to confirm it's all gone,it seems unlikely. I'll have to ring the one in my Man Cave when I've had the consultants meeting after the scan!

    The dog is helping me out... He's making sure I don't put on weight by insisting that I share my food with him Joy

    Hope it all goes well for you too

    Paul x

  • Former Member
    Former Member

    Hi all. Tomorrow is my PET scan following my last treatment 3 weeks ago.

    Fingers crossed that it's all gone, but if there is the slightest doubt, I'm ready for more treatment. 

    In any case, I have this nutcase keeping me sane! 

  • Former Member
    Former Member in reply to Former Member

    Fingers crossed for you!!! Pup is flippin adorable - massive dabs Joy Dogs are just the best

  • Looking for great results 

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

    See my story

  • Good luck.  Hopefully you’ve smashed it.

    I had my final radiotherapy session yesterday and now have to wait 12 weeks for my PET scan so as to not get a false result in case cells are still dying!

    I would have liked to know this side of Christmas but at least I can now live like a normal person in ignorant bliss for 3 months which I am very much looking forward to.

    Your dog is adorable.  Enjoy those cuddles.

    Fingers crossed for today.

  • Former Member
    Former Member in reply to Spring2021

    Wow - that treatment  has gone so quickly. I didn’t realise there was such a wait for a PET scan after radiotherapy. 

    Take care 

  • Hi Paul

    Best of luck, been thinking about you and wondering how you’ve been. I had my 6th and hopefully final r-chop treatment yesterday. My PET scan will be in 6 weeks….fingers crossed!

    Keep us all posted. Great pic, your dog is beautiful.

    Sarah x

  • Former Member
    Former Member in reply to Sassy1234

    Apparently the PET scan can be just 4 weeks later if you aren't having Radiotherapy too. 

    I'm starting to get back to normal now... Just need the hair to grow back before winter gets here!