Hi,
I am writing from Greece, so forgive my poor English. I decide to write my story as I read your posts for a long time and I found them very supportive.
Early June 2019, my brother had a tonsillectomy. He is 39 years old. Some days later his biopsy show Diffuse Large B-Cell Lymphoma. It was a very socking period, he is a healthy guy, eating healthy food, working many hours per day, non-smoker.
He had 6 rChop rounds or chemotherapy and except a serious infection on August which kept him for three weeks in hospital with high fever everything went according to doctor's plan.
His last round was completed in October and early in December he had his first pet scan after the end of treatment. Result was DS2 - doctor said complete remission.
I forgot to state that the lymphoma was staged IA.
During all these months, I read and read statistics and analysis and some times I feel very anxious about the future. I don't know if this is a good practice but I have to say that I am very worried - sometimes more than normal.
Before some days he had a flue infection and in a blood test his White blood cells were very low - around 2,23 (normal is 4,00 to 10,00). I wonder if this is normal three months after ending the chemotherapy. Is it due to the flue infection? Or is something going wrong?
His next pet scan is end of February.
Hi and good to read your brother has achieved remission re his blood counts all I can say is from my experience of 8 rounds of rchop it took months before my counts started to move towards what would be classed as normal. So its likely its just due to his body still recovering, it does take a while, and equally it can take a couple of years before all the drugs are completely out of his system.
John
Hi Dasli73 and another welcome to Community.
Great to hear that your brother is in remission.
Chemos like R-CHOP are very effective at dealing with Lymphoma providing long term remission and even cure.......... but chemo like this is as equally effective at knocking the bodies immune system crazy.
I am now over 4 years past my last chemo and for the past three winters I have have been 5 times back in hospital (31 days) with Chest Infections, Lung Fungal Infections, the RSV Virus, Pneumonia, Septics and A Fib
The body takes time to recover and heal.
Thank you so much for your reply, both of you! I found your posts during this period very supportive! Most of the times, helping me to give my brother a good advice..
I understand from your posts that it is normal to have low number of white blood cells, even if he is completing four months after chemotherapy. His doctor gave him a really high percentage from the beginning starting from 87% to 92%. He is a very positive man and he treated with the lymphoma really brave.
I thank God every day that he is doing well, but back in my mind there are many worries and I really can not leave them behind..
You may want to have a look at this great paper as it highlights the milestones of recover post treatments.
Hello Dasli73,
I read your post and I got interested. My father had been diagnosed with DLBCL just a week ago after a hydrological probe from a grown up thing on his tonisil. It all started afteraafter he woke up with a swollen lymph node in the neck. We lost about 1.5 months to get diagnosed:-(
We also had a CT be scanner and several lymph nodes are also swallen but singles and not that much swallen now.
Now they offer us a chemotherapy. I'm really scared about it. Also nothing was really cleared on the next steps. I was wondering if you can share more about the treatment of your brother?
What therapy they used?
I am from Bulgaria so very close to Greece;-) all my family speaks Greek also.
My dad is 55. Having no other symptoms just the swollen lymph node in the neck.
I wish you a lot of health!
Hi Futureisours,
First of all, I hope that everything will be ok with your dad.
My brother had 6 cycles of RChop chemotherapy. He was diagnosed in sage IA, without symptoms, just the swollen tonsil. He finished chemotherapy in 15th of October and he had two pet scans after that showing complete remission.
He was treated in a cancer hospital in Thessaloníki, named Theagenio.
In case that you would like to ask anything else, please feel free to do it! I will be happy to help!
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