Hi all. I haven't posted for quite some time but do pop in to read posts from time to time. In a nut shell I was diagnosed with a dlbcl in May last year. I had a large retro-peritoneal mass and smaller area in my spleen. I had 6 cycles of R-CHOP followed by radiotherapy and responded well to treatment. After a period following treatment of feeling pretty low (I gather this is not unusual) I'm back at work now and enjoying feeling well. I had a review appointment this Monday and was surprised that my LDH is raised. Reading posts from others calmed my fears quite a bit but I didn't know the level until the report arrived today. 500 is rather higher than I expected and I can't think of anything to account for it. I know any infection could raise it as can alcohol but I rarely drink and am otherwise well I feel. I do know it can fluctuate too. It's being retested in 6 weeks which does seem rather a long time to wait. I guess I've been pretty lucky feeling I'm off the roller-coaster for a while and I'm not keen to be back on it again!
Love and hugs to all on this journey
Minty x
Good to hear from you Minty, from my experience counts like LDH could jump around all over the place. LDH levels can move for various reasons and a high percentage is not cancer related.
4 - 6 weeks for a retest is ok and let’s look for this to be a fuss about nothing.
