One of my parents was diagnosed with CLL earlier this year which came as a shock, totally unexpected and I am struggling to come to terms with the situation. I am all for communication but when a person shuts down and has quite frankly never been one for talking about their emotions, feelings and concerns it is very difficult knowing what to do and think, how to offer support whilst at the same time looking after my own wellbeing. I have my own personal health issues to manage but I'm worried sick about what's happening at present and what the future holds. Has anyone else found themselves facing such worries?
Hi and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike and I help out around our blood cancer groups.
I don’t have CLL but was diagnosed way back in 1999 with a rare incurable but treatable type of skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix.
CLL and indeed SLL are different forms of the same disease and are often classified as types of B-cell non-Hodgkin lymphoma and are treated in the same way. This is very confusing so although your patient has a type of leukaemia it’s treated like Lymphoma
This link my help you understand butter.
lymphoma-action.org.uk/.../chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll
People will have their own thoughts and coping methods once told you have cancer and shutting people out is indeed one. are they on treatment or have they been put on Active Monitoring (Watch and Wait) ? as this can often be a challenge to deal with.
I see you have joined our Carers only group. Do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma Zoom support groups including a specific Lymphoma Carers Support Group.
Always around to help out and support you in this journey ((hugs))
Hi and welcome to this corner of the Community although always sorry to see you joining us and to hear about your parents CLL diagnosis. I am Mike and I help out around our blood cancer groups.
I don’t have CLL but was diagnosed way back in 1999 with a rare incurable but treatable type of skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix.
CLL and indeed SLL are different forms of the same disease and are often classified as types of B-cell non-Hodgkin lymphoma but are often treated in the same way.
So although your parent has a type of Leukaemia it will be treated like Lymphoma - yes it’s
You may find this link helpful https://lymphoma-action.org.uk/types-lymphoma/chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll
Closing down and not talking is a normal reaction and in the early days it’s hard to communicate and understand, it’s a type of denial in some way. Are they in treatment or are they on Active Monitoring (Watch and Wait) as this can be hard work.
Do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma Zoom support groups including a dedicated Family and Carers Support group.
You will have lots of questions so ask away and we will do our best to help you navigate this journey ((hugs))
