Hello Everyone,
What a fabulous place full of inspirational people, I have learnt so much from the informative posts here.
Please excuse the long post .......
Well… I’m here because I’ve just joined the club that no-one wants to be a member of, after a bladder infection with bloods taken, 2 weeks ago my GP dropped the bombshell that I have Leukaemia.
Doc said that my lymphocytes were high - 22.9 with WBC 27.5 and they were abnormal.
The next morning, I went to my local hospital to have more bloods taken for a Combes test and a Cell Marker test.
The Doc then rang a few days later to say my other tests had come back and they were all fine.
These were Celiac, Anti-body screening: Direct AHD, Anti IGG, Anti IGA, Anti IGM, Anti C3C and Anti C3D – I think these were testing my red blood cells…but I don’t know to be certain?
She confirmed today that the bloods showed that I have CLL.
I now want to know if I’m mutated or unmutated and I’m praying I’m not 17p deleted.
I’ve been going to the Docs for 3 years (same surgery, different doc) with complaints of a bloated stomach, reflux, and a feeling that something wasn’t ‘quite right’.
I have small lumps in my neck and I think they’ve been there a while. My thoughts are that I’ve had this for a good few years.
Another thing is my upper stomach area just below my chest is swollen and mildly sore to the touch although not in the area of my spleen - but right across the middle. I've noticed I really 'feel' stress in my chest now - when I have stressful days at work, (I run my own business) whereas I used to cope very well with stress - almost thrived on it!
Otherwise I’m reasonably healthy (not as fit as I should be) my ideal weight is 70 kilos and I was around 73. I say was, because I’m now down to 71 kilos after mostly quitting drinking and having a healthier attitude to life, since my dx (a whole 2 weeks ago!)
Despite the diagnosis - this lifestyle change is such a positive step for me. I do have scary moments but overall, I’m trying to be positive and will do what ever it takes to live a happy and healthy life.
My biggest worry is my daughters 12 and 9...I really don’t want them to know until they really have to.
