Covid19 and cll

Thank you for your replies. I am already shielding but I'm trying to get my partner's employer to understand that he also shouldn't be working. Would be easier if I had a text/letter from the NHS but not received it yet. At least I can now tell them that CLL is definitely one of the criteria for shielding. 

Hi all,

If anyone hasn't heard either by letter or text by Sunday, you can register here:https://www.gov.uk/coronavirus-extremely-vulnerable

or you can do it right now if you wish.

Best wishes to all, stay safe and be well,

Mike

Hi everyone, thank you all... It truly is a frightening time, I feel so helpless... I've still not heard anything, although my boss did a risk assessment on me today, she didn't think I would have to stay home as, "you're pretty low down the list of cancers" as I've not had treatment etc!!! I explained about my immune system being pretty poor, lymphocytes basically shot... and she did the head tilt and shrugged shoulders... Ah well! Stay safe my lovelies, big virtual hugs to each and everyone of you xxx

Sal, unfortunately your boss needs to understand that you are ‘way up’ in the governments extremely vulnerable group.

Just ask them to look at the Governments Information

You need your look after yourself

People falling into this extremely vulnerable group include:

1. Solid organ transplant recipients.

2. People with specific cancers:
   • people with cancer who are undergoing active chemotherapy or radical radiotherapy for lung cancer
   • people with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment

I'm being shielded at work, by not being put on the front line, but as information is changing so often, we're all playing a bit of catch up! Does it sound bad to say I'm waiting for the text or letter to take the decision out of my hands..? Thanks Mike et Al, responses very much appreciated. S 

Government Information for us all.

COVID-19: guidance on shielding and protecting people defined on medical grounds as extremely vulnerable

Information for shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19.

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

Dick

It’s important to remember that once you have been diagnosed with a blood cancer you are living with a blood cancer.

I was basically on W&W for 14 years for my type of NHL and I was still classed as having full on blood cancer. During my W&W it was coming and going then a trigger (virus I was told) set it off so went into full on treatment.

I have been in remission for 3 1/2 years now and my team did say that they just don’t know what this new virus will do to any dormant cancer cells that my immune system is ‘just’ keeping under control - so doing my best to keep it at a safe distance.

lymphoma-action.org.uk/.../active-monitoring-watch-and-wait

Hiya all

 I was diagnosed with CLL about three years ago and am on watch and wait and probably like many others I haven’t received any communications D from anyone to confirm the latest instruction for high risk persons

i have a daughter who has gastroparesis and is on tpn six days s week as well as a pej drain tube

She received a text last Monday and has received several communications since

I am assuming therefore that if I am on the  high risk then I would have received something  by now

The guidelines are very clear that anyone with a blood cancer is regarded as extremely vulnerable.  Being on watch and wait doesn't negate that.