Hello everyone,
I am glad that we have a supportive community, and at the same time, I am sorry for the reason who brought us together.
My husband was diagnosed with CML just a few days ago and next week he will start imatinib.
I am a bit worried about what is he allowed to eat or not. I know he cannot have grapefruit and blood oranges, but what about oranges, lemons and limes?
The treatment weakens immunity, so I would like to start a diet of smoothies and juices. Any advice on greens, leaves and fruits to go on these drinks will be highly appreciated.
Thank you.
Hi KarlaC and welcome to this corner of the Community although I am sorry to see you joining the community………. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you. You can also click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
As for food, I was told the same about grapefruit Abut the mindset was to think like being on a pregnant diet keeping away from none pasteurised foods, shellfish, live yogurts…… just try and eat a health balanced diet…… but be very carful about take away foods!!!
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a person with CML in it so worth checking.
Always around to help more or just to chat
