Hi. I was diagnosed with Chronic Myeloid Leukaemia just yesterday. Came as a bit of a shock, although I'd had several abnormal blood tests and a bone marrow biopsy confirmed it.
I feel strangely relieved to know what it is, having been very tired for a few months. I start on the tablets next week, though not yet confirmed which ones I'll be taking.
I've read a lot of good information today about CML, and have lots of questions for the Doctor next week. However, I would love to know how much physical exercise I will be able to do in the future? I have always played a lot of sport and been very active so this is important to me.
Many thanks
Hi Tresco and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but I was diagnosed back in 1999 with a rare, incurable but treatable type of Non Hodgkin's Lymphoma reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I appreciate the journey rather well.
In the early days it’s all about understanding and once you get more information and talk with others the journey will get more understandable.
So let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks provide amazing support and the Heamatology Support Group I attend at our Maggie’s have a few folks with CML.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
Do get back to me if you need further help ((Hugs))
