CML

Hi and welcome to the Community. I just thought I would drop in past and say hello although I have a different type of blood cancer.

I do feel your frustration, is there a comfortable path?...... I think there is a path that embraces the journey and helps us walk it, is it comfortable?...... 

I was diagnosed with my rare type of NHL way back in 1999. I was told “Incurable but treatable but would never see any remission”

So over the first 14 years I had multiple relapses and eventually in late 2013 it became very aggressive so had 6 cycles of chemo (750hrs), 45 radiotherapy zaps and two Allogeneic Stem Cell Transplants and was told in Sep 2016 I was in remission for the first time in over 17 years and doing great - so there is always hope and that is what you need to focus on, not the bumps in the road.

I love this Nelson Mandela quote “I learned that courage was not the absence of fear, but the triumph over it”

I lived in the moment of each day and did not worry or stress about tomorrow. I have seen this posted in the Community “There are two days in every week you can’t worry about - Yesterday & tomorrow.

You can’t change what happened yesterday and can’t control what will happen tomorrow so live for today”

I am sure that some of the group members will be along - all the best.

Hi Rebeltaz,

Whilst I personally don't have CML, my wife has been recently diagnosed. 

Regarding being angry, what's there to be angry about? You have done nothing wrong, nor have you failed!! 

You are a survivor of something potentially life threatening. Channel your energy into being, first if all, positive. This is all about mindset. Being defeatist is negative energy, you need that to continue winning. Second of all, look for ways to relax yourself. Meditate, listen to calming music and try breathing exercises; they really do help. They're not a quick fix, so preserver. Also, try to be busy with something that is mentally stimulating. Engaging your mind in something else will help remove those negative thoughts. Is there an online course you can take to help you with your career? 

Lastly, the fact you've survived for 15 years is incredible and you should feel a real sense of achievement. 

Keep going! 

I have just been diagnosed with CML and have been extremely frightened and anxious.  I am a female living alone aged 57 and just the fact that you have survived fifteen years on the chemo tablets has given me such hope today!  Isolation sucks I know, but just think to yourself something like "my CML likes me to take a tablet a day to keep it away"!  You are doing great and I hope that you are now back on a more comfortable path.