Afternoon all, I have been taking imatinib for 41 days and today is the worst day I have felt. Totally drained and mentally fatigued. Is this the drug or the leukaemia or both? Has anyone else experienced this sort of effect from it? I have...
Hi Has anyone had a heart problem occur whilst on imatinib? My husband who is in his 70's has diabetes and hypertension has slowly become breathless and exhausted over the last 16 mths on imatinib he hasn't reached molecular remission. He had a heart...
Hello My husband was diagnosed 16months ago. He is on Imatinib but his molecular readings have gone down slowly then gone up then down again. He seems to be struggling with fatigue really badly . There is a discussion about changing his medication but...
I was diagnosed with CML in Jan 2021. On Imatinib for a year (changed due to side effects). Then Dasatinib for 3 years. Stopped due to huge plural effusions on both lungs found after a few months of being unwell, cough, losing weight and shortness of...
Hi all My partner was diagnosed with CML a week ago and has started chemo on the tablet form of Imatinib 400mg 2 days ago, the first day he was very tired no energy then day 2 well no other way to describe it - like a Duracell bunny he is constantly...
Hi everyone, Thought I'd say hi and see if there is anyone else out there with m.s. And now I've just been diagnosed with cml. Kinda feels like my body is going through it at the moment. And it seems to be a rare thing, of having both of these conditions...
Hi All, I was diagnosed with CML out of the blue in October following a blood test as I kept getting cellulitis that wouldn't go away with antibiotics. My wbc were 250+ so I was admitted to hospital for a week to bring that down. I have been put on 400mg...
Hi! I was diagnosed with Chronic myeloid leukaemia in February. I was initially on Imatinib but my 3 month BCR-Abl wasn’t optimal so i was switched to 300mg Bosutinib. I also had low neutrophils on Imatinib and have been taking Filgrastim. My latest bloods...
Hello, I have been diagnosed with CML 2 months back and currently on Imatinib 400. I have lost taste for most of the food items and having nausea frequently. Also wbc count fluctuate too much every week. Any ideas / suggestion would help
I have found that on occasions I have quite severe pain in my lower leg bones. This pain is so strong it makes me want to scream out. It is also accompanied with lower leg muscle cramps so I have double problems. My haematologist thinks this is probably...
