Stage 4 out of the blue

You are never alone against this nasty disease, I hope you keep fighting and come out feeling even more positive, I had an open Nephrectomy which had a huge tumor, lost an entire kidney and am still recovering from damaged nerves which hopefully will recover and settle in time, I had a second scan and two small nodules came up but are treatable and will keep fighting. So you are not alone

John

Cheers john, I'm so so frightened.  I've put a brave face on it for years  (alongside feeling like a freak with no vagina ) mow, I just feel so !oody  hard done by, I know there is always someone worse off. But I've out up with so much crap over these years  but at least  I was alive,  now it seems doubtful I even have that. I'm so frightened 

Amd I'm sorry to hear of your  cancer,  hope its treatable? I'm as unsure of what to say in these moments as people who don't have cancer.  I feel so wrapped up in my own grief and fear ,I forget others are going through it

not to worry I am going to tackle it head on, am scarred but have gone this far, they said its treatable. all you need is a little bit of hope so dont worry there are people here all going through the same, always someone to talk to.

Put a brave face on it. It's difficult but things may turn. Out better than. You think

Speak to people here and join a group.

Good luck

Thanks 

Hi Ninamary and welcome to our group.

What a difficult time you've gone through, so thank you for sharing it with us. It’s so sad to read about everything and to see you’ve now had this diagnosis. It must have been a real body blow.

It the group you don’t need to be alone-we are here to try to help support you, listen and offer as much help as we can. If you click on my name you can read my story and it can be a good idea to complete your own profile information if you feel ready to do that at some point so that others in the group can read your story and know a little bit more information.

Has your consultant suggested what your treatment plan might be? We have other ladies being treated for stage 4 in the group and I hope they might come along and reply too. 

Don’t worry about any kind of post you want to make-nothing needs to be positive all the time, and life can unfortunately deal us some cruel blows. Have you got other family support or a good network of friends around you? I do hope so, as this will be very hard for you to deal with. 

Please keep in touch and let us know how things are going, and I’m sending a virtual hug for now as I think you need one.

Sarah xx

Hi John6177 

I notice you haven’t joined any groups yet so you may want to join the kidney cancer forum where you can get support from others with the same cancer. This is the link, so if you click on it you’ll be taken directly there and can join and put up a post to introduce yourself.

Kidney Cancer Forum

Sarah xx

Thank you,  I'm so angry with everything and everyone,  I have so many things to worry about,  my darling dog is having age related problems,  I'm trying to organise things in casein go before her  ,but dint know if I can cope if she goes before me,  I have to wait to see if my cancer will be a good candidate for the  chemo immunotherapy,  so another 2-3weeka of waiting,  I can't operated or opened up as the scarring is so bad from all the other surgeries.  I was completely butchered by the 1st and 2nds surgeons  and treated (apparently) completely wrong.  It was such a shock today and it had to be done over the phone as I couldn't get to the hospital in person.  I'm.very frightened and angry at the universe and surgeons.  I've felt like a freak being without  a vagina (and no back up support) for years  but managed to mask my grief so I could get on with life, now I just feel empty, angry,sad, ajd very very lonely.  I willmgo ajd click on your story now. I need to pull myself out of this black hole bit I'm not winning atm.

Thanks , but it's not kidney cancer  I have x