New here - CIN2 and HPV

Hi Kime and welcome to our group.

I don’t have experience to share that’s similar to yours as I went straight to a cervical cancer diagnosis, but it may be that other ladies in the group have been through something similar and will come along and post. 

However everyone’s experience will be different, so it really will be a decision only you can make. The hope is that cells will regress and go back to normal without treatment (ie without the LLETZ) but no-one, not even a doctor would be able to guarantee that would happen. Having  a LLETZ should not affect your fertility. I hope you can read some other experiences, although we don’t get so many ladies who have CIN who come back and post again. Fingers crossed some might be reading this.

I hope you’ll let us know what your decision is and how you get on as it might help others in your situation.

Sarah xx

Hello,

I’m sorry to hear you’re going through this. It’s very stressful isn’t it  

I can shed a bit of light on this as I had a similar ish experience. 

In 2021 I had had my smear which revealed borderline changes but high risk HPV positive, so was invited for a colposcopy. At my colposcopy the colposcopist took a biopsy and said the changes looked more like CIN2, which the biopsy confirmed. 

I was pregnant and then had a miscarriage during this time period of receiving smear results, colposcopy and then CIN2 diagnosis. I was offered expectant management or active management (LLETZ), but because, like you, I knew we wanted another baby (asap as I’d just had the miscarriage), I chose expectant management. They discussed this at the MDT and ‘allowed me’ to be on the expectant management pathway. 
This involved 6 monthly colposcopy’s, however I did get pregnant a few months later and had second baby August 2022. I had a colposcopy during pregnancy and then 2 postnatally where my cervix improved at the first one and then looked normal at the second. 

I then got pregnant again December 2023, and had our third (and final!) baby 4 months ago, August 2024. I had a colposcopy when I was only about 5 weeks pregnant (was already booked) and my cervix looked normal then. 
I’ve now had my postnatal colposcopy November 2024 and my cervix looked to have changed, biopsies confirmed back to CIN2!! So have been advised to have LLETZ, which I’m having in February. 

So long story short, I chose to have expectant management as it was safe to do so and we were growing our family and wanted to avoid the associated risks with a LLETZ, but now I am done I am happy to have the LLETZ, albeit mildly anxious that the results of the LLETZ will be more serious. 

This could be too late to be helpful to you now as I appreciate you posted a while ago but I thought I would share regardless. Hope all goes well whichever route you go down! x 

Hi jxde,

 Thankyou for sharing. It actually has been awful with the whole decision making and sadly, I was left in the dark for 11 Weeks before they would make a decision to treat it or observe. 

I actually never got that meeting and I decided to go ahead for the LETz; once I finally got hold of someone. 

 They have honoured it, as they originally said I could opt for, and I will be having LETz on the 7th of Jan.

Your information, albeit not the same for everyone, is how I'm feeling my odds would go. I would end up here again or potentially worse. 

 I feel some peace of mind out weighs everything right now. 

I really do appreciate your information on this and I hope all goes well with your biopsies. 

Be nice to know and update on your side too. 

Kim x

Hi Kim,

I’m sorry you had such poor communication but hope you have some peace with the decision you’ve made and the plan going forward. 
It would be great if you could let me know how your LLETZ goes please if you were happy to share? I’m really apprehensive about mine but have heard reassuring things from people who have had them before. Mine is on 7th February!

Hope you had a lovely Christmas x