I was diagnosed with cancer Monday 13th Feb, have been having MRI and CT etc. As it stands at the moment I am classed as Stage 1b but have been told this could change when my results come back.
Feeling a little bit lost with it all tp be honest and my emotions are very up and down. At times I feel numb about it all and others times it upsets me.
Currently sat in the waiting area waiting to see the high risk anesthetic and just looking for some insight and or support about what's going to have moving forward.
Hi Musicmum and welcome to our group.
You've been plunged into that turmoil of tests and scans which is a difficult place to be, but things usually settle once there is a plan of action.
It’s not possible at the moment to say what’s next, although the treatment for cervical cancer is pretty standard for each stage based on international guideline, and the stage will be the determining factor.
At stage1b it could be possible that you have a hysterectomy, but it’s also possible that the stage could change when the scan results are in which would mean surgery wasn’t an option and you would need to have chemo and radiotherapy. So it’s a case of wait and see at the moment.
Your results will be discussed at an MDT(multidisciplinary team) meeting where all the specialists come together to make the final decision on next steps. Then you will be told the plan of action.
We have experience in the group of both radical hysterectomies and chemoradiation, so can definitely help with any questions on either of these options based on the treatments we have completed.
I hope you don’t have long to wait for your results, and that you will soon know what’s happening. Please feel free to post anything in the group from questions to a vent-this is a safe place for you to discuss anything with us and we’ll be happy to help support you through whatever comes next.
Hi my name is daisy and new to this.
I have had my appointment and they have said due to some of other health issues I can't have key hole surgery.
I found out that I am currently listed for a modified hysterectomy plus removal of my lymph nodes and something that I can't remember the name of that sits just under my digestive system.
I know this could change when I see the consultant though.
The recommendation for a radical hysterectomy would be open abdominal surgery rather than keyhole, as research has shown that this has better outcomes in terms of reducing the rate of recurrence. I’m not sure what a “modified” hysterectomy involves-there are a number of different types of hysterectomy, but “modified” is not a term I’ve heard used. Removal of lymphnodes would be a standard procedure to ensure that they are clear of any cancerous cells.
No problem-they need the stage to be confirmed as nothing can happen without this last piece of information, so hopefully the appointment with your consultant will happen once all the results are collated.
Hi I had a radical hysterectomy for stage 1b1 in mid January. Once you know what the exact plan is it does begin to be less scarey. Its the loss of control that I struggled with but the hospital staff were all amazing and the few days after the surgery were not nearly as traumatic as I expected and they controlled the pain so well.
The recovery period feels long and being diagnosed with cancer does play games with you emotionally but just take each day at a time. It's a marathon not a sprint and you will get there if you don't put too much pressure on yourself. We are all different and affected differently by different aspects of the treatment l. We all have good and bad days but plenty of us here to help you through xxx