Hello 
I am in my fourth week post chemo and Third week post radiotherapy and I know I should be more patient but it’s the one thing that frustrates me the most is my hair shedding . When does it begin to ease off and begin to grow again? I have noticed some tingling sensations which I’ve read as signs of new growth or follicles waking up from treatment but if I had some kind of timeline from others I’d probably feel a bit better , rather than generic online info . I have a thin layer of hair so didn’t lose it all completely and still have lashes and brows. My hair usually grows quite quickly .
On another note .. does anyone feel like communication after treatment is non existent ? I feel like it’s “ you e had treatment , off you go .. see you in a couple of months “ i don’t know what i can and can’t do post treatment so finding my self emailing my oncologist via someone else who then forwards the email and waiting days for a response . I assuming as I haven’t been told specifically not to do things then I just crack on as ‘ normal ‘ . I was also referred for therapy at my very first chemo session . This was mid May and I’ve heard nothing since . I don’t need it now ,I needed it during treatment 
whilst I’m glad my treatment has finished the communication throughout and afterwards is shocking ., considering what a shock and mental upheaval this whole experience is .
Hi Delliea
I hope things do feel mentally better now your treatment is over, and I hope some others can share their experience with their hair. As I only had Cisplatin, hairloss didn’t affect me.
However, I can definitely empathise with the feeling after treatment that you’ve been left to it. I found it hard after the constant daily radiotherapy and weekly chemo to be suddenly ‘cast adrift’ as that’s how it felt. I didn’t ask for any mental health help, but having done so since then, it took time to set up and start after I did ask.
I can’t say from my own experience that communication improved over the following years but others may have found it different. After my first post treatment mri, there was nothing else except 3 monthly check ups. The onus was on me to report any concerning symptoms, and there were no more scans.
I was so lucky that at least something was spotted at one of those checkups as I had no symptoms at all, yet my cancer was back.
In the following years, after my recurrence, I had mainly telephone appointments which eventually went to an annual basis. Again the focus was on me reporting any symptoms of pain or bleeding. I think I expected to be followed up much more closely even after my first chemoradiation treatment, but that wasn’t the reality for me.
You haven’t mentioned specifically what questions you have needed answering post treatment, but if there are any you haven’t felt were answered, please feel free to ask here. Someone else may have been thinking the same, so it might be helpful. I can’t remember having any questions about what I could or couldn’t do, so I just got on with things mainly. I assumed unless I was told otherwise, I would just do what I felt able to do. I hope you’ll find some answers about your hair, and that recovery will continue to go well for you.
Sarah xx
