Good afternoon, I'm 18 months after treatment, but have had many issues since. I have insufficency pelvic fractures x 3 and damage to my bowels which has got worse from an MRI scan done in December. That today my oncologist told me it will get worse and will need to keep an eye on.
Does anyone have theses late side effects and can give any advice please.
Many thanks Leigh
Hi Missmoggy98 (Leigh) and welcome to our group.
I’m sorry to read that you are still struggling with late side effects-I was hoping that others may have replied with their experiences before I responded, but I did want you to know that your post has been seen.
It looks like your consultant hasn’t been able to provide any solutions so far and I wondered if your hospital has a late effects clinic you could be referred to? Will you not be able to get help unless things deteriorate? Have you been given any idea of what might be next if things do get worse? It’s tough for you to be told to live with things which are impacting badly on your life,
I recovered from my first line treatment pretty well over all, and my bladder and bowel settled down fairly quickly after treatment ended, so I don’t have relevant experience to share, but I hope you’ll hear from others soon. I’m not sure what the damage to your bowel is, and what effect that is having but I do know that my bowel was badly damaged by radiotherapy. Has it been identified as radiation proctitis? I wasn’t aware of that at the time as it didn’t actually affect me, so I was surprised to find it out!
Sarah xx
