Ct scan for planning

Oh Angela, my decision would have been different now for sure after everything I’ve had to endure. I admit I didn’t want to lose my hair, but that seems so minor now when I’ve lost everything from my pelvis! I had this thought that I didn’t want my kids to see me as a cancer patient. But if I were in the position to be offered it now, with all that I know, I would definitely go for it. As you say, hindsight is a wonderful thing.

Sarah xx

Has anyone said yes to the trial and not been given the extra chemo

As this trial in now in the final stages (phrase 3) there must be some proven evidence it is working.  However they will not know the actual effects for a few more years after the study has finished.

One positive of being on the trial is that you are closely monitored and have extra support via trial nurses etc.

I  am going to try the cooling cap to help avoid the hair loss.  I will keep you updated on progress

I decide to take part following a conversation with someone who had the standard treatment a few years ago and would also have take up the offer if a available.

Also, any results would help inform future treatments which could affect future family member or friends.

I really want to do the trial only thing thats given me doubts is don't know how long I will have to wait to start treatment and if I wait then don't get selected for the extra chemo and I have lost time. It's really giving me a headache as don't want to make wrong decision. Ahh

I only said yes yesterday and my first chemo session is booked for next week.  They really bent over backwards to get things started quickly   I think it maybe due to the trial recruitment end date is fast approaching.

Speak to the hospital and they should be able to give you estimated timescale 

Overall it is your decision and you know what is best for you and your family. 

Hi DLT

I don’t personally know anyone who has gone on the trial and not had the extra chemo, but there must be ladies in this position as half of the participants get the extra induction chemo and half don’t. This randomisation made me uncomfortable, in case I didn’t get the extra chemo, but at the time of being offered the trial I was not nearly as knowledgeable on cervical cancer as I am now. 

Sarah xx

Not long to wait to start Debbie-I know the trial will stop recruiting at the end of October. 

Sarah xx

Hi All 

I signed up today for the clinical trial find out next week which arm I'll be on 

Hi DLT

I have my first Intro Chemo session tomorrow,.  Fingers cross that it won't be long before you start your treatment, please let me know how you get on.

Debbie x