Newly diagnosed

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Hi all, 

I have just been diagnosed with cc two days ago. 

I believe the Consultant said upper stage 3. But it's all a bit of a blur. 

Back hurts so bad and now my whole body. Not sure if it's in my mind. 

I'm finding it hard to come to terms with it.

Mri and ct scan coming up in the next two weeks. 

Then a treatment plan but I'm sure they said chemo and radiotherapy. 

Has anyone else had this stage diagnosed? 

Scared, confused and angry.

I can only think of the worse case scenario. 

  • Hi  and a very warm welcome to the online community

    I'm sorry to hear that you've recently been diagnosed with cervical cancer and feeling scared, angry and confused is perfectly normal. Most people find that once the tests are over and they have a treatment plan they can cope much better.

    I didn't have the same type of cancer as you but I do know the worry of thinking that every ache and pain in your body is related to the cancer. Of course a lot aren't but our bodies have let us down big time and it takes a long time to accept an ache for just that rather than worry. 

    Have you been assigned a cancer nurse specialist (CNS) yet as you could explain your aches to her and she will arrange for you to be seen by your team if she thinks it's necessary? She'll also answer any questions you have and help you to make sense of your diagnosis.

    Although no one from this group has come forward yet there will be plenty who are the same Stage as you. While you're waiting for replies you could use the search bar in the group to look for previous posts which mention Stage 3.

    When you feel up to it, it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi, I think I have a cns, I phoned, I left a message and have had no contact back as yet and that was 9 days ago.

    I have now had a MRI and am having a ct on Tuesday. 

    I guess about a week after that I'll know what's going on for certain. 

    Very much c scared that he cancer has spread so in one way I don't want them to tell me I just want then to tell me where and when treatment will be. 

    Just trying to be "normal" right now 

    Thank you 

  • That's not very good that your CNS hasn't returned your call after that length of time . Of course she could be on holiday but you'd think someone else would pick up her messages Disappointed

    It's good that your scans are progressing and hopefully you'll know what you're dealing with soon. It's natural to be scared that the cancer might have spread but I'll be keeping everything crossed that it hasn't.

    Trying to keep life as normal as possible right now is a good idea as it really helps to keep your mind from wandering to the 'what ifs'. You might find having a read of this article on how to ease worry when waiting for test results useful.

    Do come back and let us know how you get on

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hello

    I hope you don't mind me asking but are you Harvitt from Jo's Cervical cancer trust website? I've just replied to your post if you are. Dealing with uncertainty i& waiting for results & imagining the worst seem to be a common thread in this world we have found ourselves in!! I have to wait until June to find out exactly whar's going on & it's hard not to lose it at times!! I just wanted to let you know that I care even though my situation is not exactly the same as yours. Let out all the feelings & rant on here if you have to!!!

    Hugs & best wishes - I' m much better at offering support than I am at asking for it!!!

    A
  • Hi, 

    No that's not me, but I am on that site aswell. 

    Thank you for your words of advice. 

    Waiting 4 months would drive me crazy as!!

    Hopefully I get my answers in a little over a week and then start treatment  

  • Hi

    Thank you for your reply. It's strange that your clinical nurse specialist didn't get back to you. I was given a phone number after lletz treatment & called it when recovering at home to see if my symptoms were normal & the lady comcerned told me the best time to phone was 8am before clinics started. It may be that yours was away or that they didn't catch your message on the answerphone. If I were you I would phone the number on Monday & ask why your call wasn't returned. You need the support. I hope that they come up with a diagnosis & a treatment plan for you soon so that you know more where you stand.

    Hugs!

    A
  • Hi again - on Jo's Trust my 'name' is 55!

    A
  • Hi

    my names the same on both, save me getting confused. Lol

    I will try phoning after my ct on Tuesday see how that goes.

  • Hi hope you manage to get through to them on Tuesday. Try to take things one day at a time - easier said than done I know

    A
  • If you're feeling stressed in the meantime the MacMillan helpline is good & they may be able to advise you about more support

    A