Good morning all, I am not sure if I am on the right website but just need a little advise and hopefully hear stories of similar experiences to mine so my mind is at ease.
The past 2 years I have had CIN 2 and it’s recurred twice I’ve had 2 leeps and biopsy’s done. This year my smear test came back fine but I was getting seen by my gynaecologist for concerns of my vulva and insisted I needed a biopsy done on my cervix and possibly my vulva I have a lump on both. I ended up walking out of hospital and not having my biopsy. I have recently come back positive for HPV.
I know it will sound silly that I walked out of hospital and couldn’t face getting another biopsy done 6 months later but I was in a lot of pain and just couldn’t understand why I needed a biopsy done on my cervix if my smear test came back clear but I have HPV? I wasn’t in my usual department with the nurses I have had for the last 2 years and she would usual do my biopsy but no I was in the vulvoscopy clinic which I thought was to see my lump on my vulva and nothing to do with my cervix but he was insisting I needed a biopsy done on my cervix.
I have been getting irregular bleeding and clotting and pain during sex, but I mark that down to the fact I have pcos and I do have awful pelvic and back pain. But the one thing that concerns me the most other then the cervical biopsy is this dreadful heavy achy pain I have on my vulva were the lump is located and the pain can least for a few minutes until hour and I feel this every couple of weeks. But I get sharp pain in my cervix that makes me double over that lasts couple of seconds but that has been more regular not sure if it’s because of the lump on my cervix or the fact of the leep procedures I have had. But I can’t shake the feeling of the fear of the ‘WHAT IF’ I do have cervical cancers or vulva cancer. I am 23 this January and been told so many times that I am to young to have cervical&vulva cancer.
I hope someone has had similar experiences and slight confusion as me to explain why I need cervical biopsy done.
Hi and welcome to the online community
I'm sorry to hear about all the tests and biopsies you've had to have over the last few years.
I don't have any experience with these types of procedures to draw on but I noticed that your post hadn't had any responses. This might be because no one in this group has had the same experiences as you or that the right person hasn't read your post yet.
It can be very scary when you don't understand why a biopsy needs to be done so it would probably be a good idea to go and have a chat with your GP as they should have access to your records and be able to tell you why your consultant wanted this doing.
I do hope you can find the information you need
x
Good morning, Angel 170
As suggested by latchbrook, I haven't responded because I haven't had your experience. Although we all turn to Macmillan and join specific groups, each experience is unique. I see that you are in pain and worried. This must be a difficult place to be in. On my own journey, I have found that seeking psychological support (Macmillan on the phone, Maggie's face to face) was the first step before I could turn to action, be it decisions, asking questions, treatment etc. I believe fear is a big obstacle to making other things as easy as they can be (no matter how unpleasant or undesirable), so I completely understand you walking out.
I hope you find the support you need for the next steps. Perhaps the nurses you've had for the last two years can provide some guidance on that?
With best wishes
Thank you for responding to me, I woke up this morning and I was in a lot of pain with my whole vagina with shooting pains that was going into my legs and lower stomach and couldn’t get out of bed this Morning, I don’t know if it’s related to any of this or not but it was so uncomfortable. I hope I do manage to find the right support But I have just been so emotional with everything, I have booked in for my biopsy and I go next week on Wednesday which makes me feel sick to my stomach because I was in so much pain last night.
Thank you so much for replying to me x
Dear Angel170,
I'm glad you've made a decision which should bring you closer to treatment. In the meantime, why not have a chat with one of the good people at Macmillan support? A free phonecall away you may well find some relief for your emotional state. When I called them, I was very distraught. I cried a lot during the call, but by the end of it, my head was much clearer, I felt calm and able to move forward. That makes a big difference to everything. I believe the medical profession now use psychological tools to help people alleviate physical pain. Your mental state cannot be helping the way your body feels. There is nothing to lose by ringing them. Just find a quiet room to do it from and give yourself an hour or so...?
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All this is really personal and, as my mum says, "People do what they can", so whatever you decide to do or not do, I am with you in thought and just hope things improve for you very soon.
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