I am in remission but now I nerve damage - why don't they tell you this side affect?

You should be referred to a physiotherapist. If physio doesn't directly help, there are orthotics, that is braces splints and other things that can help. If the hospital aren't helping, your GP can refer you. Some hospitals have orthotics departments, the Orthopaedic Hospital at Stanmore in London is one example. I hope you get some help and you feel better in time.

Hello

im sorry to hear of your problems, I am also stage 2b not yet clear but finished treatment at the end of last year.

ive only had some stiffness so can’t really compare but have found reflexology and reiki very helpful. My specialist nurse referred me to the complementary therapy team and agree physio may also help. I’m must be frustrating to do so well and get the all clear and then have to deal with this, I wish you the very best and hope you get some help to feel better soon x

Just to add in terms of counselling I have found this to be helpful as I found it hard to come to terms with my cancer diagnosis and also had Hypnotherapy good luck x

Hello and many thanks for your reply. i was really annoyed and depressed when the 2nd consultant said the same thing, its so unfair. Thank you also for your recommendations, I shall check them out.  I was unlucky in that even though the hospital I was treated in had Macmillan nurses, they never approached me to discuss how i felt so all the information I required was from sites like this. 

Hello Londoner12 and thank you very much for your suggestions, i really do appreciate it.

That’s not good for you too not to get any support from the hospital. Could you speak to your GP for a referral? I had a referral to the local hospice who locally to me offer lots of services and will be doing a course at the gym with them this month too, I do walking but no other fitness and they do a personal strength building plan and sounds like something similar could help you, I hope you can find some support soon to make you feel better. My local hospital (not my treatment hospital) also have a Macmillan centre who offer services so again if you have something close maybe your GP could refer you 

After having a second opinion where both consultants said it was caused by Chemotherapy/radiotherapy my Oncologist said the nerve damage was caused by the epidural i had with each Brachytherapy, I had three.  Because it's so rare the Oncologists don't tell you about it....which doesn't help me now

Hi Summer1234, many thanks for your message and ideas that may help me.  I've had two visits so far with a Physiotherapist who was optimistic that I will improve and that he has had people that were worse than me and are now walking, it's so good to hear something positive as GP Consultants are so negative.

Hi Medway9

Thats much more positive that they hope things will improve for you, I do agree the consultants are not the most positive people at the best of times. That must make you feel much better in yourself and am really pleased you have something in place that should help you, x