Has anyone had similar symptoms? - Cervical Cancer

FormerMember
FormerMember
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I am a 44 year old Mum of 5.  Last year I started to experience tail bone pain at the same time as my periods as my periods only lasted 3 days I just put it down to my age and an inconvenience.  Then around July last year I had my first break-through bleed it was quite big but I didn't go to the doctor immediately I waited to see if there was any pattern to the bleeding thinking it might be the menopause.  But there was no pattern sometimes I would pass massive clots and get stabbing pains in my ovaries when i walked.  Then I started to bleed during and after sex.  One night during sex I had a massive bleed it scared me and my partner so much so I went to the doctor the next day that was late October '16.   He sent me off for blood and urine test which showed my hormone levels were fine but I was anemic he then sent me for an ultrasound which showed I had a polyp but the doctor didn't think it was big enough to justify the bleeding I had been describing.  Everything else was normal.  As I was still bleeding he put me on hormone tablets to stop the bleeding so I could have a pap smear done.  During the pap smear I had a massive bleed.  I also told him about the tail bone pain and asked if it could be connected he wouldn't say but did seem concerned when I said I had, had a small anal bleed. 

My smear results came back as high grade Cin 3.  That was just before Christmas that was when the word "cancer" was first used my doctor said it was on the list of possible causes to my symptoms but they'd know more after the colposcopy.  

During my month long wait for the hospital my tail bone pain became constant being on and off hormone tablets to control the bleeding and the worry and stress and pain from my tail bone was causing my mood swings to be all over the place.  It caused so many arguments at home and my poor children who have no idea what is going on think I am mean all the time.

I got my colposcopy at the end of Jan'17 and it was not good.  She showed me the damage the HPV virus has done to my cervix (this was the first time someone had said I had HPV) and then she showed me my actual cervix and it was horrible.  I can only describe it as a large area of small scabs.  She did a vinegar and iodine wash I only remember the iodine wash turning everything yellow which I have since read online isn't good!  She also took 3 biopsies during which I had a really massive bleed which she had a hard time getting under control she seemed concerned but when I asked her, her thoughts she said that she was not into speculation.  She would only commit to saying that regardless of the results I need a cone biopsy to remove the damage to my cervix and the polyp.  I told her about my tail bone pain and asked if it was related but she just muttered and wrote a lot in her notes I was feeling very faint and sick at the time so didn't push for an answer. 

I am due to go back for the results and the cone biopsy on the 14th.  I am so scared.  I bled for a week after the colposcopy and was due my periods 3 days ago but they never came I didn't think I was pregnant but knew there was always a chance as I am not on any contraception so I took a pregnancy test which came back negative.  I haven't missed a period throughout all this and I have had some massive bleeds and still my periods would always come on time they are usually like clockwork I am not sure if the hormone tablets are causing the problem but I have been on/off them since Nov and haven't had any periods missing or late til now.  I dunno if it is really relevant I am just throwing it in there.  The tail bone pain is my main concern it is constant and really sore.  Is tailbone pain a symptom of cervical cancer??  

Whenever I read online about cervical cancer I never see anything about tailbone pain has anyone else had this??  I know no-one but the doctor can say if I do or don't have cancer but any feedback from other peoples experiences would help a lot.  I am going insane with the wait. 

  • FormerMember
    FormerMember

    Hi beccy, well I've never  heard anyone complain about tailbone pain is it more lower back pain maybe , when I had my smear done it  came back severe dsykariosos I'm not spelling that right lol sori but I know smear results come back cin 1,2,or 3 and then i think the severe dys is the last one cin 3 could mean ya have pre cancerous cells I also had heavy bleeding but the bleeding was so bad no amount of sanitary protection would do couldn't leave the house I either had to sit on the loo for hours or get in the bath it would just pour out it was like turning on a tap that didn't turn off  was yours ad bad as that, if your smear came back cin 3 and the bleeding your having was maybe a warning to go get it checked and ya have ya maybe need a lletz procedure done and the HPV virus everyone gets it sometimes it goes away on its own sometimes it doesn't ya can have it a long time and not even know.its important to look after your immune system as it helps fight off these viruses and other wee infections, let us know how ya get on 

  • FormerMember
    FormerMember

    I'm 27 yrs old. got diagnosed with hpv in 2008 and now i have cervical dysplasia (cin3) and am experiencing tail bone pain too but im going to tell my doctor in two weeks in my next appt. have you heard anything from your doctors? im scared too, esp when all the doctors do is slap your shoulder with a not so comforting "youll be okay, dont worry". 

  • FormerMember
    FormerMember

    YES! I’m going through this exact thing now. I had my biopsy yesterday and I’ve had bad tailbone pain which goes down my legs when I sit for a long time. I’m 36 in oklahoma and so nervous about the results. I also have 4 kids and had an ablation 11 years ago so I never had bleeding ever.

  • FormerMember
    FormerMember in reply to FormerMember

    What ended up happening.  I have been having tailbone Pain for two years and just had a pap and have a large cervical polyp.  Ultrasound next week.  Worried.