Hi all, I was started on induction chemo at the beginning of the year for my 1b3-2b hpv positive p16 (whatever all that means) bulky tumour, but after one session of chemo they said I couldn’t have any more. I have a pre-existing auto inflammatory condition, and felt as if I hadn’t taken my biological for a few days, full body aches, nausea, was sick once, had quite bad stomach pain and chest pain, but after some high dose aspirin felt a lot better.
I feel as if they didn’t try and control my inflammatory response to the chemo and now I’m not having any more induction chemo, and the cisplatin is cancelled too so I will only receive radiotherapy (Embrace II). I’m worried they’ve overreacted because they don’t understand my condition and I’ll have a worse outcome and go through all this radiotherapy/long daily journey to the hospital for nothing.
Have many people had success with just radiotherapy? Or not managed to get through the whole lot of induction chemo or started CRT but had to stop chemo? It feels a bit wrong to question the doctors too much but also I’m worried that every time I go to the hospital, another treatment option is taken off the table, as first it was no surgery, then no chemo etc.
