Pet ct outcome

Hi Kimberley8 

That’s really good news after all your anxiety and I hope you’re really holding onto the words “curative approach”. We’ve had lots of ladies in the group come successfully through their 3c1 diagnosis and treatment, so I hope you get replies here. Sometimes we find that ladies who have come through this just want to put it behind them and they leave the group which is shame, but I can understand they don’t want to be reminded of it. 

Have you got details of your plan yet and when you’ll start? I hope you feel a bit better about things now.

Sarah xx

I do feel a lot better. It'll be aggressive course of chemoradiotion and I think they said bracytherapy xx

Yes, many us have been through this treatment as treatment for stage 2b is the same format. There may be additional chemo before the chemoradiation but that would all be discussed with you. 

Lots of us will be able to help you if you’ve got any questions about the treatment, even though our stages may be different, so please ask anything and we can share our experiences with you. So glad you’re sounding more positive now about things.

Sarah xx

Thank you so much and yes definitely more positive knowing intent to cure! Xx

Hi kimberley8

I was stage 3c1, I started my treatment April 2024. I had 5 rounds of chemotherapy cisplatin and 25 rounds of radiotherapy, I didn't have brachytherapy I had a further 10 rounds of radiotherapy.

I have updated my profile if you wish to have a read.

I am currently recovering from.a hysterectomy as I had a recurrence, but if there is anything I can help with please feel free to ask and I'll do my best to help.

Kind regards 

Will I lose my hair? Xx

No you dont lose your hair with the cisplatin, if you go with the 6 week induction chemotherapy before you start the chemoradiation, then unfortunately this is a side effect of that chemotherapy but you will be offered a cold cap which is supposed to help and wig support. I don't have any information on that though as I went straight for the chemoradiation, and turned down the induction chemotherapy. At the time it was a hard decision to make, and unfortunately I'll never know if I'd have gone for it I may not  have been in the situation I'm in now.

Hi 

I was diagnosed with stage 2 a , as it had spread just outside into my vagina I couldn’t have a hysterectomy.

i was offered the 6 week the 6 week induction chemotherapy. I went for the cold cap and didn’t lose my hair thankfully ( I opted to try to keep my hair as I had young grandchildren and didn’t want them to see me lose my hair )! I found it ok it’s takes 10 -15 mins to get used to it etc and also puts an hour onto treatment time . 
I then went on to have the chemo radiation with cisplatin but unfortunately only had 3 treatment as my blood work was weak etc , hymoglobin was to low and neutrofils were low .i ended up having blood transfusion but it was all doable . The radiotherapy is everyday and I did it on public transport about an hour journey . It surprisingly how quick it goes I cannot believe I started my journey in December and now I’ve been few weeks from treatment . I also had brachytherapy which I dreaded the most but it was ok and it also went quickly . I had few side effects from radiotherapy , tiredness and bit bowel problem especially wind etc . It seems daunting but I hope this help and please ask anything else you have questions about . Take care 

kind regards val 

I was the same-it was just a trial when I was offered the induction chemo but I turned it down.

Then I only managed 4 sessions of chemotherapy and no brachytherapy at all, so I had a few things which meant my risk of recurrence was always going to be increased. But I try not to look back, because it is what it is and no point in beating myself up about it. We’ve just got to deal with where we are now.

Sarah xx