Just diagnosed

Hi Kimberley8 

I’m sorry you’ve had your diagnosis confirmed, but hopefully it is early stage for you. I had adenocarcima stage 2b so as it was a higher stage a hysterectomy wasn’t possible, and it usually is for an early stage cancer.

So I’ll leave the other ladies to share their experiences of treatment for early stage cancer, and hope you’ll get some helpful replies.

Sarah xx

I should just add that I’m aware of the extreme anxiety you have told us about, and fears of dying before you’re 30, and I’m very conscious that I had a lot of treatment and major surgery which would not be the case for you, so I’m mindful of not wanting to upset you further.

The most likely treatment for an early stage cancer is a hysterectomy of some type, which may or may not require further treatment, but you need to have all your results for the doctors to make a final decision on your next steps.

Other ladies can share their experiences, but remember that things are individual to you and unique for you, so ultimately your experience may not be the same.

Sarah xx

Thank you so much for your reply. I really appreciate it xxx

Hi Kimberley it sounds like you are hopefully very early stages, I was stage 3c and my tumour was 3.7cm big, 4mm is tiny so I hope it will not be lots of treatment for you and success rates are so high in early stages. Even with my advanced tumour I have had total remission and the tumour was gone after 4 weeks of radiotherapy and chemo and I still had another 3 weeks of treatment to go. I believe you will be just fine, stay positive and let us know how you get on but honestly don’t worry to much as you will beat it x x 

Aw thank you so much for your kind words.  I'm so glad your treatment worked for you. It was just being diagnosed at 27 you never think it's going to happen to you. It was only August last year that I had to have a pacemaker also so I have ptsd from that let alone a year later finding out i have cancer. My first thought was my 7 year old isn't going to grow up with his mum. But yes it was a relief to know it was early xxx

Hi Joanna.  Thank you for posting this! I'm 3C too,  second (of 4) chemo next week. Then radiotherapy.  Could I ask you what the radiotherapy involves? 

Congratulations on remission! X

Hi Alibuzz and welcome to our group.

You may want to join the group (by clicking on the “join” banner in black at the bottom of the page) as I see you haven’t joined us yet.

You can reply to posts without being a member of the group, but you can’t start a new thread of your own unless you are a member of the group.

Sometimes replies can get missed in existing threads, so if you join the group you could make a new post and introduce yourself. That way more members will see it and you may get more replies. 

Many of us have done both chemo and radiotherapy, and a number of ladies have been through treatment for a stage 3c diagnosis and successfully come through the other side. I was stage 2b at my original diagnosis, but did chemo and radiation, so please feel free to ask any questions of us all.

Are you doing chemotherapy before having concurrent chemo and radio? 

Sarah xx

Thanks Ali, you will get there too I’m sure!, sometimes I’ve read that 3c has even more success rates than some earlier diagnosis. I had my radiotheraoy at Guys hospital and I would have my appointments Monday to Friday with weekends off. You turn up, drink a glass of water so that your bladder is full but not too full this is to protect it and keep it away from the tumour zapping I think. Then when you get called you will go into a changing room to put a gown on (but if you wear clothes with no metal on you can carry on wearing these which I did so just leggings, t shirt, jumper etc nothing with zips. Then you go into theatre and lay down on a bed and a big machine moves around you and does it’s work. The actual zapping which I called it takes about 15 minutes and was completely painless you just have to lay still. I used to go into a meditative state and actually think about what I was going to make for dinner haha. After that you’re up and out. The side effects are acumalatibe so I didn’t feel any different at all til maybe week 3 or 4. You’ll probably get diarrhoea and feel tired as treatment goes on and be careful blowing off incase you poop slightly and also was gassy at night. But these arnt very bad things in the big scheme of things. These radiotherapy machines cost millions of pounds and are amazing at their job you are in excellent hands. Good luck and feel free to ask me any questions x x