Hi everyone,
I had my initial pre-op appointment with the surgeon today. He explained more about my diagnosis, surgery and what to expect afterwards, giving me the opportunity to ask questions and checking that I understood along the way. A very helpful meeting where I felt listened to and well cared for.
I will be having an open radical hysterectomy with fallopian tubes, ovaries and lymph nodes also removed as a precaution. I have been told to expect to be in hospital for 4 or 5 days after surgery.
I have an appointment next week for pre-op health checks and to meet the recovery team for info and advice then I’ll have another blood test 2 or 3 days before surgery. I’m awaiting confirmation of the surgery date - the surgeon said that it will be in February but not the first week of February as he is already fully booked that week. So it shouldn’t be long to wait for surgery - the sooner it takes place then the sooner I can start recovery.
If anyone has any tips/experience to share, that would be much appreciated. All general tips/experience welcomed - below are a few things I would particularly like to ask about if anyone is able to help.
Thanks,
Louise
Hello,
I had this surgery in 2013 - it sounds like you have a solid plan for it and I'm glad you feel safe and cared for.
Definitely take ear plugs and an eye mask to help with sleeping.
I was given the tips of taking some massive granny pants a size up from your normal ones! I laughed but they did help as they covered the scar and that initial swelling.
Also face wipes and I was advised to take a nightie in rather than PJs if you have a catheter so you won't get as tangled up.
Take a long phone charger too and just nice cosy things like a dressing gown.
I had a shower over a bath and was fine with it. My partner helped me the first couple of times
One thing I found really helped was getting a 'grabby stick' for when you drop things as bending over can be tricky in those first few days at home.
Having some ready meals / home cooked freezer meals helps too so you don't have to lift pans etc.
Best of luck with your operation!
Jo
Hi L2025 Louise
I’ve had a number of hospital stays over the past few years, and my advice would be not to overpack. Those bedside lockers are small and I’ve always taken more than I needed. The most important thing was a long charger cable for phone/ipad. The normal ones are no use as the sockets are usually behind the bed and can be hard to access. Simple day clothes-I favoured leggings and a top, and nightshirts rather than pjs as it’s easier for nurses to check your wounds etc.
A little bottle of concentrated squash to add to water, lip balm as it’s a dry atmosphere, eye mask and ear plugs as it can be noisy at night and hard to sleep, some sweets to suck if your throat is dry after anaesthetic, light dressing down and slippers to walk to the shower, body wipes and a body spray to freshen up. Nothing is provided in the hospital-I’ve often found it difficult to even get a towel so always packed my own after learning this the hard way.
You can’t be lifting or bending afterwards, so if you can get some meals in the freezer in advance that will help. Forget about housework in the days after getting home-you need to recover. I had issues with constipation so use stool softeners rather than laxatives if you need them. I also used a little stool in the loo to put my feet on sitting on the loo- this gets you in a more natural position which makes things easier. You don’t want to be straining at all-I had 25 staples on my open abdominal wound and was very afraid they might burst-they didn’t but I was worried!
I have a shower cubicle separate to the bath, so I didn’t use the bath at all when I came home. If you can get someone to give you a hand in and out getting over the bath at the start that might give you more confidence.
Sarah xx
Hi Jo. Thanks for your reply. Good to hear that you were okay with the shower over the bath. Great idea about the grabby stick - I hadn’t thought about that. My partner will be at home (even when he’s working he works from home) but it will be handy not to have to call him for help every time I need something picking up. I’ll get some big pants ordered too! x
Thanks for all the useful information, Sarah. I’m not a light packer so will probably find that I take too many things to fit in my locker and have to send some things back home with my partner!
Glad you mentioned the towel - I’ll pack one in case. My surgery is at a different hospital, but at the local hospital where I was admitted to a ward for the day to monitor heavy post-hysteroscopy bleeding, within ten minutes of me arriving on the ward from A&E I had been given a cup of tea, breakfast, stockings, a gown and a towel plus had my lunch and dinner order taken - it was all very efficient, but I was worried that being given all these things was a sign that I was likely to be staying in hospital for longer than the A&E doctor had suggested! (Luckily, the bleeding stopped so I could go home at the end of the day.)
I’ve been treated at multiple hospitals for different things, and some are better than others in my own experience. One of the times I was admitted as an emergency and was ultimately in for 9 days. I had my own en-suite room the first night, but still wasn’t given a towel and had nothing with me-not even a toothbrush! I have 2 stomas so I need supplies with me but had to wait for my partner to come with what I needed. I got given absolutely nothing.
I try to be better prepared nowadays even when it’s been an emergency ambulance job!
Sarah xx
Heya,
I had mine 3 weeks ago for hospital deffo recommend - long phone charger, lip balm (I had really dry lips) , nighties , eye mask , I brought Robinson pocket sized squash was so handy when I felt I needed a bit of sugar as I had little to no appetite in hospital . Slippers and nightgown.
at home I wish I had a pregnancy (L shaped pillow) for when I could sleep on my side. I could get into the bath to shower but used my daughters step for the toilet and found it easy enough .
lots of loose trousers pjs lounge sets - my tummy is still tender and can’t wear anything tight .
and remember listen to your body and try not to do too much it can set you back a few days if you try to do too much.
hope this helps
lorzy
Hi Louise,
I had exactly the same op as you back in August. It sounds like you have a great caring team. Mine were too. I was in for 7 days as there were some complications but everything is ticketyboo!
Things to take - deffo nighties not pyjamas as you'll probably have a colostomy bag. Ginger biscuits, wet wipes, a long phone charger lead. Whoever picks you up to go home could bring cushions as a seat belt is very uncomfortable and you need to be higher up. Bedrock if you get cold feet!
I have to step over the bath to get into the shower so I got a little fold up stool which was a godsend!
Also a grabbing stick to help pick things up off the floor or put socks on.
Hope this helps, and hope you get you date very soon! All the best and big hugs
Lynne x
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