LVI discovery after radical hysterectomy

Hi Lemonade47 

I’m really sorry to read you’ve had this unexpected shock from your pathology results. I can understand why it’s shaken you when the hope is that everything is done with after surgery.

I’m not able to share any personal experience as I didn’t go through this following my pathology results after surgery, and I haven’t needed additional treatment, but I hope someone in the group will have relevant experience to share. 

I hope you won’t have long to wait for your appointment to discuss the next steps, and that you are otherwise recovering well from your surgery.

Sarah xx

Hi Lemonade47

2017 I was diagnosed with node negative stage 1B2 (old Figo 1B1) squamous cell cc, tumour size 3.8cm, and had a robot assisted RH.   Post op histology showed LVSI, PNI (perineural invasion) and a close margin and I was restaged to 2A1.  So fairly similar to you, I guess a bit worse although your tumour was a bit bigger than mine

I was then robustly advised to have chemo-radiotherapy which I agreed to.  I found out a couple or so years later that the decision about chemo-radio had not been unanimous - not sure it helped to know that as a hindsight thing!  I don't know what  I'd have decided if chemo-radio had been offered as an option rather than firm advice.

I'm still here 7 years later and as far as I know still NED but I didn't come off too well in terms of side effects and I went through a phase of wishing I'd asked more questions e.g how my prognosis compared with and without the chemo-radio. But prognosis is one thing and what actually happens is another - not even the best doctor can know for sure.  All we can do is give decision making our best shot and move forward.

Hi Beth, thank you for your reply. I’m so glad you’re still here to tell your story. I feel like it’s a no brainier and I will of course accept further treatment but I am more scared than I was at diagnosis. X