Hello Ladies
Well finally started treatment yesterday (Tuesday 25th) kicking off with Chemoradiotherapy so the day went thus:
8.00am - Cardboard Bowl of Hot water put in front of me and told to put my hands in there up to the wrist. To help them find a vein in the back of your hand I think.
8.30am - First "flush through" drip attached. a saline solution that took 2 hours.Then various additions were put in. Maybe a steroid solution and antisickness before the Chemo drip went in for two to three hours, then (and this is the good part) they hooked on the final "flush through" drip for the last two hours and told me I could take it down to Radiology and get my Radiotherapy done!! Brilliant. So we actually left the hospital at around 3.30 approx. The staff were so kind and wonderful and I can't fault them on any level!
Finally got my Radiotherapy full schedule and it doesn't look too bad until we have some very early ones in the last couple of weeks but we can stay over in the hospital hotel which is in fact what we did on Monday night for the 8.00am start yesterday. I felt absolutely fine yesterday, just had a bit of a full feeling in my gut but no sickness. I had a bad start as I had a cracking headache due to severe lack of sleep. I was worried about going to the loo with the drip!! That was just silly. Back today for Radiotherapy at 12.55pm but had to be there at 11.25 to do enema and drink the water beforehand. They were having problems with some of the machines so I didn't get in until 1.40 by which time my bladder felt fit to burst. So note to self: Always ask if there's a delay before drinking the water! Do feel tired today though but trying to stay awake until I sleep for the duration of the night!
Please Angela ask me anything that I may have missed and thank you so much for your thoughts.
Sarah thank you for all your support in getting me through to this stage.
Hi Angela, I panicked like mad when they told me I was going to have to do this but really it is nothing to worry about. And they have nice large loos in which to perform this manoeuvre!! xxx
Gosh by that time I'll be at Sarah's stage of needing no enema encouragement!! xxx
If I have to do it I swear il stay in the toilet till it's all over..but il bring change of underwear just incase xx
Hi Angela are you any nearer knowing your start date? It must be imminent now, I hope so. I've just started Round 2 of chemoradiotherapy today after my first week consultation with Oncologist yesterday. I hope I can get through this with as minimal side effects as I'm having now but I seriously doubt that. Stay positive, you will be well looked after and the staff will go above and beyond to make sure your every need is met. Bizarrely, it can be quite a relaxing day on Chemo day as long as you bring enough to keep you entertained. Sending healing thoughts your way xxx
Hi Snobird
Week 2 underway already! I agree that the chemo day was quite relaxing, and I didn’t mind it. I hope you keep going with minimal side effects from everything-some people are lucky enough to sail through it all and you might be one of them! Big hugs. xxx
Hi Snobird.. no date yet. I'm getting anxious to get it all underway.It shouldn't be much longer I'm so happy you're coping well so far! Long may it last
Do update me when you get some free time please . You got this!
Angela xx
Hi Angela
Hope you get your start date very soon-waiting for it when you want to get on with things is so hard, isn’t it? xx
Hi Sarah
Yes..I'm not very patient lol. I first went to my gp about all this I guess early November so it's been 3 months or so.. patience is wearing thin now. But I'm sure I'll be sent for very soon. Thanks ladies for all your support! It's much appreciated.
Angela xx
Hi Angela
I felt the same-let’s get on with it and get rid of this! I went to the doctor towards the end of August. Treatment finally started in November, 6 weeks after my diagnosis but it felt like an eternity! xx
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