Finally Treatment Begins!

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Hello Ladies

Well finally started treatment yesterday (Tuesday 25th) kicking off with Chemoradiotherapy so the day went thus:

8.00am - Cardboard Bowl of Hot water put in front of me and told to put my hands in there up to the wrist. To help them find a vein in the back of your hand I think.
8.30am - First "flush through" drip attached. a saline solution that took 2 hours.Then various additions were put in. Maybe a steroid solution and antisickness before the Chemo drip went in for two to three hours, then (and this is the good part) they hooked on the final "flush through" drip for the last two hours and told me I could take it down to Radiology and get my Radiotherapy done!! Brilliant. So we actually left the hospital at around 3.30 approx. The staff were so kind and wonderful and I can't fault them on any level!

Finally got my Radiotherapy full schedule and it doesn't look too bad until we have some very early ones in the last couple of weeks but we can stay over in the hospital hotel which is in fact what we did on Monday night for the 8.00am start yesterday. I felt absolutely fine yesterday, just had a bit of a full feeling in my gut but no sickness. I had a bad start as I had a cracking headache due to severe lack of sleep. I was worried about going to the loo with the drip!! That was just silly. Back today for Radiotherapy at 12.55pm but had to be there at 11.25 to do enema and drink the water beforehand. They were having problems with some of the machines so I didn't get in until 1.40 by which time my bladder felt fit to burst. So note to self: Always ask if there's a delay before drinking the water! Do feel tired today though but trying to stay awake until I sleep for the duration of the night!

Please Angela ask me anything that I may have missed and thank you so much for your thoughts.

Sarah thank you for all your support in getting me through to this stage.

  • Hi Angela, I am starting treatment on Monday and I had to use an enema before my planning scan and now for each radiotherapy treatment. I was told it’s to ensure the bowel is empty and the same size/position each day. Having a full bladder apparently also helps to push the bowel out the way so helps to avoid unnecessary radiation to that area. It’s seems to vary a lot between hospital trusts! But if you do have to use one, they sound far worse than they are and I do it myself.  Hope that helps x

  • Hi AMH87 

    I didn't have to have 1 for my planning scan so iv everything crossed it's the same for treatment. Thanks for reply Slight smile I gain confidence daily just by coming on here and interacting with you lovely ladies. My family have noticed that I'm a lot calmer and also better informed. Thanks everyone Heart️ 

    Angela xx

  • Hi Angela

    They do like you to have an empty bowel at the planning scan, which of course they didn’t advise me of in advance, causing such stress to me! Once I was 3 weeks into my radiation my diarrhoea would have ensured I didn’t need an enema at all! Joy xx


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  • Hi Sarah

    Oh dear that's sounds so stressful..they ddnt advise me either but nobody mentioned it. I'm aware of the diarrhoea with treatment but you are so light-hearted about I'm actually smiling JoyJoyJoyJoy .

    Thanks again

    Angela XX

  • I don’t think i’ve ever lost my sense of humour through all of this, although it may have been hidden for a while at times! You have to laugh when you’re desperate to go to the loo getting into the house after treatment and you just don’t quite make it, and you turn round to find your partner behind you with bleach, starting a clean up operation! I just had to learn to accept there were some things I simply couldn’t control. Joy xx


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  • Hi Sarah 

    Yeah my first week after diagnosis I was in a dark place..I couldn't even string a sentence together but I'm slowly getting back to my old self. A sense of humour is essential in this game and I'm laughing out loud at your"clean up operation" JoyRoflRoflRoflRofl

    Positive vibes

    Angela xx

  • Positive vibes Angela! We sometimes go to dark places in our minds but the main thing is not to stay there, xx


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  • Hi Angela, it is the practice at this hospital that you are given a box of enemas before radiation treatment.  They are liquid enemas that look kinda like a soft superglue tube with a long nozzle.  You have to insert it at your attendance time and wait for it to work (or not) over 45 minutes.  Then you have to drink the measured amount of water over 30 mins or so while you wait for your treatment.  It is I understand to make sure your bowel and bladder are in the right position (ie out of the way of the beams) so they don't get damaged.  My advice if this happens to you is to sit in an area close to the loo when you've performed your enema!!  It really isn't so bad.  It seems to be that many people have to do it at this hospital.  And hey, don't be afraid to ask anything.  I'll always help if I can.  Are you any further forward with your treatment plan? xxx

  • Hi Snobird 

    It's definitely never been mentioned to me so I'm Gona pray I don't have to do it..but thanks for advice on the subject..at least il be armed with info if it turns out I need enemas. No more word on start date as yet..they said last Thur at planning scan that it takes 2/3 weeks for the relevant specialists to make the plan work so iv another 1/2 weeks yet xx