Day 4 post results

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Day 4 after LLETS and biopsy, still can't talk about it without crying but it's got me thinking about the stages of smear test to diagnosis.

I had my routine smear on 12th November 20, no letter or communication from my GP since with any results which usually means all is well, previous blood tests for other things in October 20 showing no issues weren't communicated in writing, it's just how they do things I think, but then I got a call from the hospital on 23rd December asking me to make an urgent app for further investigation, luckily they could fit me in a week later which was brilliant, but why had no one from my GP been in touch with the results of the smear?  Usually these are available 2 weeks after the smear has been done?  Has any one else experienced this?

I didn't know how serious things were until I got to the hospital on 31st and the Consultant explained hat was happening and going to happen, on one hand this was OK as it didn't spoil the already strange Christmas we were having but on the other hand I would have appreciated a bit more warning, time to get my head around it and talk to my GP before the hospital visit.

I'm now in a waiting game for the results of my biopsy, should hear something back after next Wednesday. 

  • Hello Moneypenny79 the reason why you have not heard from your GP surgery is this;as I understand it  the cervical screening programme is run by Public Health England and not your GP surgery. If you have a screening result with HPV positive and severe cell changes which require further investigation and or treatment then the testing lab contacts the colposcopy clinic directly and they then contact you but do not have to contact your GP surgery but will send a letter to them after your appointment when they get the biopsy results. This is because the protocol is to see you within 2 weeks. You should receive a written copy of your screening results from the lab through the post eventually and a copy will also be sent to your GP surgery for their records. It could be with COVID and all that your written results are delayed but basically your GP surgery may not be aware of your results yet.  I only know all this because this is what happened to me except that I had treatment (for precancerous cells) before COVID. I hope this makes sense. It might be worth contacting your GP surgery yourself to see if they have received your screening results yet and also for medical and moral support. They may be able to chase up the results of your initial screening and also explain them to you. Having abnormal cells does not necessarily mean cancer. The cells are graded and are sometimes precancer. The point of the cervical screening programme is to prevent cancer - to spot cell changes before they have a chance to become cancer. They do sometimes find cancer but apparently it is quite rare. The lletz biopsy will be sent to the lab to check closely under a microscope to make sure all the cell abnormalities have been removed with clear margins and to check for cancer cells  You might find it useful to contact the nurses in the Ask th Expert section of this forum for more information or your hospital may have assigned you a clinical nurse specialist who could explain it to you if they have not already done so. I hope this helps. I'm sorry to hear you are going through this. Big hugs A x

    A
  • Thanks so much, your reply is very much appreciated xx I don't want to cause trouble with my GP I just wondered why I hadn't heard form them when in years past and all my other cervical screening results have come from them, all clear thankfully, just this time it's been no contact from them. 

    Just awaiting biopsy results now, the cervical screening test revealed cancerous cells unfortunately so hopefully the LLETZ did it's job and all is well, thanks again xx

  • You're welcome! I didn't want to cause trouble with my GP either; I just hadn't understood the cervical screening system as I had never had an abnormal result before; one of the GPs at my practice told me that colooscopy is just another part of the screening process and that made me feel a little bit better. In future when I go for medical screenings I think I will make a point of asking what will happen if I test positive for whatever they are testing for so that I have more idea of the system. I'm so sorry to hear that they have found cancer cells. Hopefully the lletz will have removed them all. Waiting for test results is one of the toughest parts of this process. I hope you are able to find ways to keep busy while you're waiting. Big hugs A x

    A
  • Hi again, work and home schooling are certainly keeping me busy whilst this limbo period passes, staying positive and happy is the key.  Big hugs back, K xxx