Hello, I am 48 and have today been diagnosed with primary breast cancer with secondary in the bone and liver. The breast cancer is very small and I was told it would have been exceedingly difficult to pick up via normal checking - this however has not stopped myself from beating myself up. As it was this way it meant that the first clue there was anything amiss was a dull ache in my right hand side which started a month ago, which I got checked out with a CT scan and the rest is history. I had no other symptoms. To find out that I have cancer, that I missed it, that it has spread and that it is advanced has left me in a very very dark place. I am wondering whether anyone can tell me of anything hopeful as I am struggling and am very frightened. In terms of treatment after my ovaries are removed I am going to be put onto ribociclib. Does anyone have any experience of this? Huge thank you for any advice and thoughts in advance
Hi Maria,
welcome to the club that nobody wants to join! We all really do know how it feels, so you can be open on this site. Not very active though but there are several surprisingly supportive groups onFacebook which are. 2nds together is a good example.
Ribociclib is a relatively new and effective drug ( which is very expensive); most people find it easy to cope with and can get on with their normal ish life! I am on a similar drug called palboci
and so far it has worked pretty well for ten months. that keeps going! I have multiple liver and bone mets and I have felt much better since taking it.
Give yourself time; a bc dx is bad enough, but to get a SBC dx at the same time is unimaginable.
mary
