Good morning. I've been diagnosed with secondaries. I'm 39, married and 2 young children that are almost 10 and 7 yrs. I was initially diagnosed in 2018 with invasive ducal carcinoma but lymph nodes negative and had a lumpectomy, radiation and tamoxifen. I was ER+ and Her2 -. In 2019 I was diagnosed with a 70 mm area of high grade dcis and had a mastectomy with implant reconstruction. Later found out I have the Chek2 mutation. In Feb this year I've had a mastectomy for risk reducing purposes and a diep reconstruction and in June has my implant reconstruction on my left redone. After the surgeries in Feb and June I started to suffer with lower back pain. Thinking it was to do with the surgeries I persevered with physio exercises, yoga and walking but no improvement. Eventually in the last weeks I've had a bone scan which lead to a CT scan and MRI and I have bone mets to the base of my spine. In lots of pain. Struggling with the thoughts of not seeing my children grow up and leaving my family. Also worried about my children eventually seeing me ill and how it will effect their lives and my husband. Also my parents and brother. Its just so hard. So I've found this group with the hope others understand as we are all unfortunately in similar positions. I dont have a treatment plan as yet waiting for the oncology team to make contact. I am also worried about my job as I have recently gone back in July after having 5 months off due to the surgeries and me trying to get my back to improve.
