Hi Does anyone know how long is reasonable to wait for CT scan? I had a bone scan 4 weeks ago which has showed up secondary cancer which I only got the result this week. I am now panicking that 4 weeks have elapsed since than scan and god knows what may have happened in this time. There I was blissfully going on holiday and not for one minute thinking there would be any problem.
I am told before they proceed I need a CT scan and the onc said to me on wednesday, make an appointment to see him again in 6 weeks. I think this is way too,long as that would be 10 weeks since the original scan. Anyone have any thoughts on this. i think its becasue the onc is away for 3 weeks, in 3 weeks time but to be honest I dont think its fair to wait that long. Any thoughts, experiences?
Thanks for taking the time to read this x
I can understand how shocked and stressed you must be. You do not say where your secondary cancer is, or have they not decided this yet? The reason they give you a ct scan before you start is so they have a baseline to compare later scans to and also to decide a treatment plan, usually depending on the results.
Do you have a bc nurse you can speak to, explain your worries and maybe she will be able to suggest a plan. Why not speak to the helpline on here for some advice?
I was dx over 5 years ago with bc and exstensive bone mets at the same time, it all seems to have been a bit of a blur at the time and nothing seemed to move quickly enough but once things got moving and a treatment plan was in place I felt more in control.
Hi lynn thanks for your response. The secondary is in the bones and I believe the CT scan is to check its not elsewhere. The wait is a nightmare and I am concerned that as 4 weeks have passed already, is the bone scan that i had now incorrect . I do have a BC nurse and whilst they are great i kind of feel this time round that the care is not quite as good as before.I was just given some handbooks and feel i have been left to my own devices and just to sit and wait for the CT scan.
Its comforting to know that your diagnosis for bone mets was 5 years ago. you are obviously doing really well with your treatment and its lovely to hear that, so thank you
x
Thanks Jacqui for taking the time to respond. I am going to be on the phone first thing tomorrow morning as I feel I need some answers after reading many other posts. Thanks again and all the best Dawn xx
Hi Jacqui I managed to get a cancellation yesterday when I rang up. They said can you get over today so I was over the moon. However when i got there they were unable to inject contrast dye into arm as veins are knackered. In the end the nurse spoke to Doctor who said w=do the CT scan without the dye. I am now concerned that we wont get as an accurate reading or as an effective one, despite the nurses telling me it was fine. Just not convinced now. Just a nightmare really xx
Dawn I had to have my last CT scan without the iodine as they couldn't get a vein, but they could still see it just fine.
I know how you feel, I was really worried too, but I think if they have a previous one to compare to, then it's ok for them to see what they need to.
They also consulted at the time, they do know I think if they really need the contrast or not.
We really need some research doing into what they can do without using non-existent veins all the time! xx
having just sobbed my heart out on a lovely friends shoulder I am comfort ed by your post Lynn and snatching the hope that I too can say in 5 years time how it was for me.
I had my bone scan laat week results today showed secondary im Brea at bone looks bad. CT will be some time next week so not as long to wait as some ao lucky I guess.
Thanks Aubergine for your reply. They dont actually have a previous one but I am hearing that they can tell with all the technology available to them without the contrast dye. I just kind of panic when things dont go as I think they should. Sometime I think I just need to put more trust and let these professionals do their job lol x
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