Itchy scalp

Hi Boswell716235 

That sounds most unpleasant, especially in this hot weather. I haven’t experienced letrozole as my cancer isn’t oestrogen sensitive, but I have had various skin rashes from treatments in the past. Some things to try - making sure you are using fragrance and paraben free hair products; avoiding heat styling tools; changing pillow cases and possibly pillows; seeing if an antihistamine (eg cetrizine) makes any difference. As ever with any new symptom it’s worth considering talking to your breast care nurse.  

Thankyou...I am using paraban free etc. But think I will try anti histamin and if course I will speak to the nurses on my next visit....or before if it still drives me mad!!!!

Omg I thought it was just me!!  Sorry to hear you’re experiencing this as well . I have phases with it but had a bad night this week where I was up all night scratching my head! I’ve been on Letrozole and Abemaciclib for 3 years and had this on and off since the start . GP gave me a shampoo but I don’t think it helped really . Let me know if you find anything else that helps. I probably should have looked really but it’s not all the time . Sorry I couldn’t be much help except you know you’re not alone suffering with this and I sympathise! Take care x

I spoke to nurses yesterday....my husband has excema so he has a steroid thingy for his scalp called beta cap.  Just rub onto scalp on dry hair..in my desperation I tried this and it certainly helped so hopefully I will get it on prescription.  Good luck.  I hope mine goes like yours does and gives me a break!!!

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Thank you, I’ll look into it. Aww I hope so for you. On a positive note , I’m still stable after 3 years on this treatment so it’s worth having an itchy head some nights (plus other side effects)!  Hope your treatment is going well xx

Actually I was going to message you again as I am on same treatment ...first year ends in January.  I was heartened to read that you had been on it for 3 years and all is well!

Gives me hope  and you are right itchy head plus all the other stuff....small price to pay

Glad to hear you’re nearly at 12 months and it’s working for you. I was told I’d maybe get 12-18 months on this regime if it worked so I kept expecting the dreaded  conversation around progression and the next line but so far I’m still stable! At my last meeting, the consultant said some people do very well on it and the good news is that when the time comes , there are now more options than there was 3 years ago which is encouraging! Where is yours?  My tumour is in my liver (it’s one but was 9.5cm - now 5cm). They thought there was more but they were cysts . Xx

I have breast cancer spread to my spine but at the moment I don't have any symptoms from the cancer just the side effects from the meds...keeping my fingers crossed that they keep working for me.  Hope everything continues to go well for you