Feel so guilty

Hi Lindz welcome to the forum. I dont think you need to be beating yourself up about not going sooner, many of us have been in the same boat and its not helpful for any of us to beat ourselves up so cut yourself some slack. 

Have they given you any potential outcome or timeframe or has treatment put things into abeyance for you? Cancer as you know does indeed suck but the treatments have moved on so far and so fast over the years that many people now live with Cancer as opposed to dying from Cancer.  You keep that chin up and we are all thinking of you and will be here for you as you need us to be . 

Sending some hugs your way for now. x

Hi Lindz

I’m in a similar position had Primary in January 21 and now diagnosed with SBC in July this year. I admit some days I am a complete mess and it’s so hard to stay positive for your family. I have grandchildren too and I love them sooo much! It was such a shock receiving my diagnosis as I wasn’t expecting it. I haven’t met anyone in person with SBC and there are no local groups in my area. Here’s hoping we can get to grips with this and start to feel in control again. Sending you lots of love xx

Hi Lindz 

I am also a grandmother - Nanny! My first bc was Ductal carcinoma in situ, 21 years ago, except it didn’t stay in situ! I had chemo, rads & tamoxifen 17 years ago.

Since 2020 I’ve been on anastrazole and infusion of Zoledronic Acid as my mets had travelled more vertebrae. I have CT every 6 months and ZA every 3 months.

all stable. When ct time comes round I start to think and black cloud appears, but I feel ok except for weight, I paint and sew for grandchildren fun things and clothing…

i paint to help stress and forget everything and see where my brush takes me….

i know this is months after your message but hope you are ok?

J x

I think doctors should make patients more aware of symptoms of recurrence.  Seems when you’re cured you’re cured and apart from yearly mammogram no further checks or even info on how to check for yourself.     I spent a year going back and forward to my GP with a myriad of symptoms which were dismissed despite blood tests flagging something not right.  I’d had breast cancer and all she could tell me …..no eeez cancer!   Spanish doctor!    Well lucky for me I saw her locum when I found a small neck lump,  she had me in for ultrasound next day….next time I saw my GP, it was ……. Eeez bad, very bad but you’re a strong woman.  A year wasted when I could have done something, too late now!  Stage 4 MTBC.   I can’t dwell on it, doesn’t change anything.   I now advocate very strongly for myself, wish I’d done so earlier.  If it’s not right, get it checked and go with intuition.