Hello to everyone
I have ER positive breast cancer which I have spine mets. I had surgery in upper thoracic spine back in September as a vertebrae was unstable and It needed to be pinned. I am now on robociclib fulvestrant and denosumab injection. I have had 3 cycles and side effects have been manageable although I have had several upper resp infections and my hair is thinning considerably. Latest scan is stable no movement to chest abdomen or pelvis. Can I ask has any one else had hair thinning or infection prone.
Hi Hennie
i take Palbociclib so same group of drugs.
i started on ribociclib which took my white blood cell count very low and I ended up in hospital for a week with sepsis in the first month. Since then the white blood count has been carefully monitored and my drugs altered to a lesser dose and now it’s more stable. As for hair, I’m 54, my hair feels thinner whereas it’s been much thicker, I put this down to my age as well as the drugs, small price to pay if the drugs keep me alive
happy to connect xx
Hi, I'm on Ribociclib & letrozole as 1st line treatment. I'm just starting cycle 7 & still on full 600mg dosage ! My hair thinned quite a lot & isn't really growing as it did before, although the last few weeks I think it's starting to grow back now. I've managed to avoid infection & neutrophils & wbc are just starting to become a near normal range !! I hope you manage well as at my 1st scan results showed really good shrinkage.
Hi Hennie. I'm on ribociclib and letrozole since diagnosed with bone mets in May 2023. I've had 3 hospital admissions with cellulitis, one unknown infection and now with recurrent kidney infection and stones. Although not directly related to the cancer, because of my low neucount I was at risk of sepsis. My dose is now reduced to 400mg.
Its been a roller coaster and I've missed a wedding and 2 holidays. It's made me feel very unsure about booking anything! My hair has definitely thinned a lot.
However, I'm written to you waiting in in the airport after a lovely week's holiday. I hope things remain stable for you..
Best wishes.
Sea Ranger.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007