Radiotherapy for neck pain

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Anyone had radiotherapy (5 shots) to relieve pain from mets in shoulder and neck? How did you get on? Did it work?

  • Hi  

    I'm sorry to read of your shoulder and neck pain. I had 5 sessions of radiotherapy to pelvic bone metastases in June 2022. I was in a lot of pain and my mobility was not good. After the sessions along with chemotherapy my pain reduced and my mobility improved. I am now currently stable after treatment. It was found on CT a long time after, that my pelvic bone had fractured due to cancer. There was evidence of healing bone due to treatment. So, I would say - yes, it my case it worked. This information may be useful to you https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/radiotherapy-explained

    Best wishes for your treatment.

    A x

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  • I've been told the pain in my neck will get worse before it gets better, any idea how long it takes to feel some improvement after the five days is up? I have been prescribed oxycondon for when it gets bad to take alongside paracetamol. Any other side effects experienced?

  • Hi  

    I'm sorry to say I can't really answer re how long it took. I was having chemo as well at the same time, so it's hard to say. As my radio was pelvic, I had sudden explosive diarrhoea, too much information, I know sorry. Skin damage to bottom and intense burning/itch. 

    It may be useful to ring your specialist nurse to ask about side effects, as neck region will, I imagine be different to those I had. I'm sure the Macmillan helpline will be useful to you also, this is the link https://www.macmillan.org.uk/about-us/contact-us

    Hope the painkillers are useful in the meantime. Hoping you get word for your radio sessions soon.

    A x

    What is a Community Champion?

    I am a Macmillan volunteer. 

    Macmillan Support Helpline

    0808 808 00 00 

    7 days a week between 8am -8pm

  • Hi DillonsMum

    I had one blast of RT on my spine as it was painful due to SBC.  They warned me it would be worse for a few days.  It was actually worse for about two weeks which was very hard and got me down.  It did ease greatly after that though.

    Hope that helps.

    K

  • Hi DillonsMum I am on the 5 day treatment and had my 2nd today and have had really bad pain since I started but the ( Ciry Hospital Belfast ) warned me that it would happen and hopefully by Thurs I would see a differance.I am on 3ml  of Oxyconone every 4 hrs or when needed which I need for the pain in my sholder

  • Thanks for that. At least I know what to expect now. should start next week. Have you had any other side effects yet?

  • Just had a phone call to say my treatment due to start tomorrow is being replaced by a single dose. Anyone else had this happen? Any comments on side effects of single dose treatment?

  • Hi

    Just as above.  I was always to get just one dose.  Also at Belfast City Hospital.  I don’t know but wonder if this means you can get further doses if the pain returns.  I intend to ask that at my next review.  Let me know how you get on.  Good luck.  

    K

  • Hi DillonsMum I had my treatment last week 5 days for Lung Cancer. The pain hasnt stoped and my lung cancer nurse told me today that it might take up to 4/6 wks b4 Iy takes effect. You can ask for your Oxycodone to be increased Mine has 3 times and up to 5ml today so hopefully I will be pain free from 2mor, So ring and ask your nurse to increase yours Hope this helps

  • Wow guys! I am just bout to have my first radiotherapy on Monday so was blown away when I saw this thread. I am so relieved to know there are others out there going through this and who know how it feels.

    Dillonsmum - I was only offered the single dose treatment. I think it is to do with the type of cancer and how it is presenting. I was told they are going to do a Big Dose to get it under control and hopefully get some mobility back in my right shoulder. Being right handed it has been one of my biggest problems so I am keeping everything crossed that this works. 

    They have already given me a bottle of oral morphine for the pain. I  don't do well on anything codeine based. I tried a dose yesterday as I was in a lot of pain after a whole day of hospital visits in 2 different hospitals. It totally knocked me out but after the best 3 hours sleep I was able to get on with things in the afternoon and felt a lot better. So maybe that could be an option if your other painkillers don't work?

    I was panicking about going for the treatment on my own. Especially when I found out that I had so far to walk and stairs to do etc and my legs are not good at the mo so its a long slow shuffle. My beautiful daughter has taken time off work and is driving a 3hr trip to bring me and look after me so I feel really blessed to have her. I also had a call from the district nurse who is coming the next day to see if she can sort out care if I need it. It was only last year I was doing this for my parents so I can't believe Im looking at this for myself! 

    I am hoping this works and that if it does they might offer me radiotherapy for my spine/hips so I can get some mobility back. Ive just started meds and have been told to be patient - but knowing I won't be able to drive for a while and finding getting up the stairs at night so hard - not easy to be patient...

    How are you all coping with this emotionally?