HER2 breast cancer with mets to liver & brain

Amazing ! I had breast cancer 15 years ago , returned as her2 positive in my bones at start of lockdown- I had 6 docatexel chemo with herceptin and other drug intravenous- I am also now continuing 1 year later with 3 weekly injections of phesgo - presume this is same as you?

It’s lovely to hear a positive voice living with cancer, I am active also apart from spinal problem caused by delay in start of treatment, but I am coping well and try to do everything as normal.

Take care everyone and I agree take each day as a good beginning and enjoy every minute.

Very encouraging long May it lastxxxx

Well done Sheila C!  Do you have any side effects from your treatment? I am also secondary HER2+ (liver mets), I have had 33 3-weekly treatments so far...I think I have a worse reaction to the new injectable drug (Phesgo) or maybe its just the toxicity that has built up through use over time?  After every treatment I get a massive head ache, diarhhea, a rash and feel so tired I go to bed for a couple of days.  My onc has suggested I take steroids alongside the phesgo, but I've taken dexamethasone before with chemo and I hate it! He also suggested taking anti-histamine but that has had no effect.  We are going to discuss moving to 4-weekly treatment to see if I tolerate it better. First a round of tests to see if there is anything else going on. I'd be interested to hear if anyone else gets side effects with phesgo??

Hi Sheila, it's really nice to hear your positivity! My mum was diagnosed with HER2+ Breast cancer in 2019, she became very poorly with her chemotherapy so only had 3 sessions. Her breast cancer has returned and spread to her liver. We found out in April 2022 and she has just started chemotherapy again. We have been told this is a gentler form. She is on Docetaxel chemo and is given it every third week for 6 sessions then this will be reviewed. She is also on Herceptin and Pertuzumab. We don't know how severe the cancer in her liver is yet as she is awaiting a CT scan. We are trying to stay positive!