Increased Activity in Bone Scan

Hi there Bekky, after being diagnosed with primary BC in may 2020 I was told that I would probably just need a lumpectomy and radiation.. my bone scan and CT scan didn't show up anything in the bone, however a subsequent CT scan in September 20 showed some thickening of the bone in my left hip and spine, indicating spread. My chemo stopped immediately and targeted therapy commenced, in my case letrozole and palbociclib. I have tolerated these meds very well, and all scans since have been stable. Thankfully I don't have any pain from the mets, and I am still working full-time, and walk my dog 3 miles per day! So what I'm trying to say is, even if worst case scenario and your MRI does indicate spread, it's definitely not the end of the line and there are many different treatments for breast cancer these days, and more coming down the line.. hang in there and good luck ... Jools xx

I am so sorry that you have had to go through all of this too Jools. I cannot thank you enough for your response. I keep lurching from feeling positive to utter despair. I cry just looking at my son just worrying to the point of almost being physically sick about how he will cope without me. You are so positive and have lifted me considerably. 
Thank you so so much. 
xxxxx

Hello Bekky,  so sorry to hear about your diagnosis.  I have mets in my spine and sternum.  I had breast cancer 19 Years ago and thought I was clear but its crept back.  However, what I want to say is that there is so much that can be done for people with bone cancer.  There are many different treatments available and if one doesnt work another will be tried.  I was told by my consultant not to worry as the condition is treatable and I would not die of it.  I know it is a real worry and it seems like a nightmare, but once treatment has started i think things will feel better.  Hugs to you love Suexx

Thank you so so much Sue. You are such a sweetheart for taking the time to respond to me. I have my MRI on Tuesday. They have said that they don’t know what it is but can’t rule anything out. I am petrified to the point where I am barely functioning which is not like me at all. It is thoughts of my four year old son that is tearing me apart as I cannot state in words what he means to me. My family keep telling me that I am torturing myself with these thoughts. I can’t help myself. I keep questioning if I caused all of this. I know they aren’t helpful thoughts and a waste of energy. You can sometimes go into a negative nosedive can’t you?
Thank you so much Sue. I really appreciate it. You are an amazing person. I will sleep a bit better tonight for your lovely comforting words. 
Can I ask you how you feel on the meds if you don’t mind? I am worried that they will affect me badly as I reacted really badly to pretty much every chemo drug they gave me except for Paclitaxel? 
Hugs and love back,

Bekky

xxx

Hi Bekky,  i am glad that my message helped you feel a little better.  I am on letrozole and paclicilib (not sure thats the right spelling) and an infusion.  I am having a scan on 15 October and hope the results are good.  Good luck with your scan.  It is difficult to be positive.  I can understand your worries over your little boy, it is quite understandable.  I am lucky in that my children are all adults.  Let me know how the scan goes.  Hugs Suexxx

Thank you so much Sue. Everything crossed that your scan goes well. You let me know too. 

Big hugs back,

Bekky

xxx

Hi Bekky,  Just wondering how things are going?  Hope your results were good.  I had a CT scan this week and will get the results on Wednesday, so hoping for the best.  Hugs to you.  Sue.

Sue, I am so sorry. I had set a reminder on my phone to contact you on the day of your scan then myself and my son got the virus from hell. Not covid but it has floored the two of us. No excuse though. How did the CT scan go hun?

I hadn’t heard anything so phoned my BC nurse on Friday. She phoned me back and said that nothing of note had shown up in the MRI scan? It was very good of her as she explained that BC nurses are not usually authorised to disclose results (had to be the consultant) but because I kept pestering them (my words not her’s) she had been given permission to let me know.  I asked her how something could show up on the bone scan then nothing on the MRI but she couldn’t explain this. The consultant is going to phone me on Tuesday at his next clinic to discuss further. 
I feel dreadful and guilty saying that I expected relief but I just get anxious about everything since, panicking about my son’s health etc. Am going to speak to GP and see what they recommend as struggling mentally with all the stress. It takes its toll on you doesn’t it? 
Thank you so much for all of your support. You have been amazing. 
Please let me know how you get on on Wednesday if you don’t mind?

Hugs and love,

Bekky

xxx

Hi Bekky, I know how scary this is! I had a bone scan in May which showed up mets in all four sections of the spine ( and other places). I have recently had neuropathy issues and had an MRI scan to eck if it was caused by cervical vertebrae but mri said that there was no cancer there, but possibly arthritis! Onc said that mri the most accurate; this should reassure you

Sue,

I will be thinking of you tomorrow. Please let me know how you get on if you don’t mind?

Love and hugs,

Bekky

xxxx