Newly diagnosed BC and now ? Bone mets in hip pelvis

Hi 

Sorry to hear about your diagnosis. I was diagnosed with primary breast cancer mid April with no involvement in nodes but after further examination by surgeon was told swelling of lymph nodes under both arms. So had MRI scan and biopsy under arms which showed cancer in some nodes.  So after CT scan was confirmed small legion in bones so now instead of having surgeryI am been treated hormone therapy as I am hormone receptor + hers neg.  So now classed as metastatic BC and on to my third round of treatment  letrozole and Palbociclib and a waiting a scan to see how treatment going.  Although never been giving bone scan or bone biopsy.  They are also going to start bone strengthening  treatment.  

Hi there, I was diagnosed last may with BC, 3cm lump, had bone scan clear, lymph node involvement. Further CT in sept showed cancer in hip and spine. I'm on cycle 10 palbociclib and letrozole, scans stable so far and I'm living life as normal, working full time etc. I try to only think about cancer around my appointments and scans and forget about it the rest of the time, though it's taken me over a year to get there. Stay strong

Jools xx

So glad your scans have been stable and you are working and living life- really good to hear thanks 

It's good to hear you've reached the stage of only thinking about cancer around appointments and that other than that you are leading a normal life, with work etc. That's just how I want to be, but wasn't sure whether I'd get there. I really feel that there isn't enough information about living with cancer, it's all still doom and gloom. 

I agree Jude3… there definitely needs to be more stories and information about living with canaver. The fear and panic is crippling.. would be helpful to hear more stories like jools-50 

Reading this gives me hope when all I can think about is the bad stuff. 

If my results go well I think I'll be starting these treatments too along with forcing the menopause to happen. 

I'd like to think I too could be taking them and living my life like you are xx

Hi ladies, I was exactly where you all are now this time last year. I was in the middle of chemo for primary when the secondaries were discovered. When I got the primary diagnosis I was actually calm and thought I was going to be 'cured' and carry on as normal after treatment. However, the secondary diagnosis sent me into a spiral of despair and insomnia. Stunnedshocked you have described the feelings up exactly , the fear is crippling. I couldn't see a future and thought that going back to work etc would have been impossible. I actually remember spending a whole weekend in my bathroom, I couldn't face my kids without breaking down. But here I am, typing this from a hotel room on my holidays! I have to say I do suffer dreadfully from scanxiety, but as each result has come back as stable, I seem to relax more after each one. I tell myself that if my current meds stop working, there are more to try and new ones coming out all the time. At my last appointment I was sat next to a lady in the waiting room who is 6 years in with secondaries, working self employed, and she hasn't even been on these new treatments yet. I'm definitely in a better place than I was this time last year and I have faith you will all get there too ..

Much love

Jools xx

Thank you so much for your reply jools. It does give us hope and is reassuring. So difficult at times. Much love  to you too

Thank you Jools so much

I hope you're having a fantastic holiday and thank you for taking time from it to reassure us through the panic xx