My cancer started 2016. I had 2 tumors in my right breast, one very large 7cm and one 2.5cm - stage 3. Started with Chemo, 20 sessions, then surgery (breast conserving surgery) and then Radium, 28 sessions. I was wiped after it all but was told 'clear', it was all gone. That feeling was just amazing.
So I was put on Tamoxifen for 5 years.
Only got 6 months on Tamoxifen when the cancer was back, two more tumors in the same breast, straight to surgery for mastectomy. Was told 'breast was gone now so cancer was gone' but we would do Chemo again just to be sure. Went to see 2 different Oncologist for opinions and both recommended Pertuzumab. Great plan was in place and start date decided. I went to Oncology ward in Hospital, Port accessed, bloods done and was told Oncologist wanted to see me. I could not have Pertuzumab. The Health services would not pay for it, I said we would pay for it (having no idea how much it would cost) but was told this would not be an option.
Long story short I did not get Pertuzumab, I got Taxol instead with Herceptin. Spent 36 weeks on this treatment (3x12) then was told I would be left on Herceptin and hormones for 2 years. Scan every 6 months to monitor. Scan November 2018, all good, Scan May 2019 cancer was back and had travelled to my liver My whole world fell apart. Heceptin and hormone treatment had not stopped it. All I could think of was my children and dying. So after 4 months of discussions and scans and MRI's etc they decided to operate on my liver. Results will be back in 4 weeks. They know its the same cancer as they did biopsy before surgery but one Oncologist told me they are unsure of what category to put me in and what treatment to give me.
Please has anyone any advice, I dont want to die.
