I don't visit this site much at the moment because I found that I was getting sucked into the bad news stories and it was making me feel very low. Anyway, as an alternative, I thought I would start a thread for positive secondary BC stories as I'm pretty sure we would all welcome them! Please feel free to add your own so that we can build a library to remind us of positivity when we are feeling that our bodies are against us! Positive stories only please. My first one is below the emojis.
I should really add a positive update of my own story. I've recently been to see my oncologist after finishing six rounds of IV chemo (FEC) and all is stable, no further progression of mets. Bones are healing well and original breast tumour has shrunk by two thirds. Her words were that I have had an excellent response to chemo and that we are in a good place right now. Next stop, surgery, letrozole plus another drug (no name given!) to switch off any cancer cells.
I'll take that result. Came away feeling much happier than I did back in June when I was first told that it had spread.
Feeling cautiously hopeful for the future.
Good luck everyone.
Thank you for posting that positive story, it really helps me to read about people doing well. I’ve just been diagnosed with bone mets and it’s a scary place so it’s good to hear how treatment has helped you.
Nicky
And ive jut scrolled up and there’s plenty more! Love them. I hope I can add mine when I start my treatment
Thank you for sharing your story and giving me hope for the journey ahead. I've just started my first round of chemo and am scanning the different sections on this site trying to gather as much information as possible. There are so many positive posts on here, even if they are not all straight forward, they have a positive outcome and help to encourage me to remain focussed and positive with my own journey.
Sending Big Hugs Kacirh,
I’m a couple of years ahead of you and remember the feeling of apprehension when I first started Chemo. I found that drinking as much water as possible helped a lot, also having soup in for when my tum was not feeling like digesting much. I always took the Domperidone in the car on the way home, so it had time to work and I could have some soup or something more substantial if I felt like it when I arrived home. Keeping up your protein intake is good to remember. I sometimes treated myself to half a fillet steak (unless you’re a veggie) I hadn’t been a big meat eater before but found that I needed more protein during Chemo.
I lost my hair after my second chemo, I found this great online wig seller called ‘Simply Wigs’, they let you keep their wigs for 2 weeks trial to see if they suit you. My choice was Jon Renau. I know not everyone loses their hair, but I found having a wig a big boost. Great for days when you’re not feeling super glam.
My Chemo really worked well, I had lung mets and lymph node and primary breast lesions, which it totally blasted.
Sending very, best wishes AndyV
Hi Nickyd1
I had a number of bone mets on my spine and pelvis, I have been taking oral chemo since March and my last PET scan showed that all of the previously active areas had gone. Disappeared.
The treatments available to us now are incredibly effective.
Very, very best wishes
Andyv
Hi, Noswad 1,
I'm so delighted to hear your good news, you are such a positive, joy bringing person that it's great to know that your positivity works for you too.
Keep up the great work
Very, very best wishes,
Andyv
Thank you for taking the time to read my post and reply to me , it means a lot. I have been able to eat ok after the first chemo ( which I'm grateful for ) and still seem to have an appetite. Keeping my protein intake up is a really good tip ( I'm not a vegetarian but have been craving peanut butter and milk or yoghurt, maybe that's why)
The day after my chemo I felt like I was wired from the steroids and it wasn't until day 3 when I felt really low and day . today is day 6 and although feeling very tired I'm managing.
My husband ha been a rock doing the cooking and encouraging me to eat and drink plenty.
I am drinking lots of fluids too. Fillet steak sounds yummy , will have to see what hubby brings home lol.
Thank you for the tip about the wig site. I did get a wig just not really sure about it. My hair is still there and I have had it cut vey short ready for when it dies come out..
I too have lung and lymph nodes and as I call it a 'mutant left boob' so fingers crossed the chemo will nuke them all.
Thank you once again for your positive and reassuring message.
grateful hugs and much appreciation
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