I don't visit this site much at the moment because I found that I was getting sucked into the bad news stories and it was making me feel very low. Anyway, as an alternative, I thought I would start a thread for positive secondary BC stories as I'm pretty sure we would all welcome them! Please feel free to add your own so that we can build a library to remind us of positivity when we are feeling that our bodies are against us! Positive stories only please. My first one is below the emojis.
Hi super ladies! This is my favourite thread and I come back to it all the time, it gives me hope!!
Initial diagnosis for me at age 39 was in Aug 2017, triple negative breast cancer (TNBC) which I got the all clear after treatment but then in Oct 2019 I was told I had secondary advanced metastatic stage IV. However, this thread is for positive stories so I want to share that I've been on Paclitaxel now for over a year (14 months), this is Feb 2021 and I'm cycle 15. Thankfully I continue to be well, work full time, got out running and most importantly get to love, be with and look after my two little children.
Long may it continue until we find that cure!
Thanks Run4it for your positive story, I hope that your treatment continues to bring such positive results. I have TNBC with mets to lungs. I'm going to start on capcetabine in the next couple of weeks and if that doesn't do anything will go on Paclitaxel. It's good to hear you still are able to do lots of stuff whilst on it. It gives me hope!
Hi ,
It is reassuring to read stories like Run4it's. I am not TNBC but i have had paclitaxol ( 74 cycles) and i did not have a problem with it, and am currently on capecitabine ( due to start 4th round) and have also been fine so far. We get so anxious about what treatment might mean, and of course everyone is different, but hopefully you will be ok too. I suspect I am a lot older than you, and I remain active, so hopefully you will too.
x
Hi ownedbystaffies. Thanks so much for messaging. Yes I am a little anxious about starting new treatment. I was on gemcitabine / carboplatin for 6 cycles which did help and cleared my breast tumour by 75% and reduced my lung nodules so capecitabine is my next step i hope the side effects aren't too bad, I know everyone is different. I've just turned 49. Thanks for your support and positivity, it's much appreciated. X
What a great idea! Thank you. We need to hear stories of hope as well.
https://www.everydayhealth.com/hs/breast-cancer/metastatic-breast-cancer-wish-people-knew/
Egs of two women with mes living for 7 and 5 years + post diagnosis. Also useful if you’ve been subjected to an ignorant discussion from someone who doesn’t understand incurable breast cancer (sigh)
This article is spot on! Thank you. People keep telling me that I will fight it as I did it the first time around and it's hard to know what to respond.
What a great idea this page is - I cannot quite work out how to make an entry so hope using reply is ok.
I have been on chemotherapy for over 2.5years due to a tumour behind my sternum - classed as incurable.
Taking each day at a time and dealing with the side effects as they come, in the main I have to say my life is good and I can do most things I want - yes a bit slower and yes maybe not as easily as before but I do believe life is worth living at all times in the hope there will one day be a cure for all cancers.
Persevering with chemo has kept my tumour stable and on a couple of occasions the CT scan has shown a shrinkage :-) I think eating healthily and remaining active does help.
Good luck to all of you, stay positive. xx
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