Hi everyone, I have been told my breast cancer has returned after being in remission for more than 5 years. Cancer was found in a lymph node buried deep in my armpit. I had 3 lymph nodes removed during mastectomy. I was also told there changes in my lung. I’m really helpless right now. I also need friends to talk to to help navigate this new phase of my life. Thank you
I am sorry you have a recurrence and possible lung involvement. I became metastatic very quickly - it was probably de novo, but not picked up initially because they hadn’t expected it to have spread as I had no lymph node involvement. It’s initially very difficult to come to terms with as you both have to grieve for what you have lost and come to terms with what it might mean. I think, like with initial diagnosis, it becomes a bit easier once you have a treatment plan. A lot of people do well, treatments have progressed so much. I have been living with metastatic cancer since 2022 and am well.

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I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
Thank you so much for this. This is so helpful. I have been scared and wondering what next to expect. I have two children and can’t bring myself to tell them this now. Doctor has said my treatment will be starting at least in 3 months time, I don’t know what that means cos I’m scared it might be a bit late and can worsen while waiting for treatment. What do you think?
All I can say is I had several periods waiting for investigations and results, so delays are part of this. Getting the full information in order to get the most appropriate treatment seems to be the important thing.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
I know that everyone on this forum who’s just read your post will be sending you all the love and hoping your treatment starts very soon xx
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