A bit scared

Hello, gentle hugs to you.  When you went to your hospital and received your original diagnosis, did the hospital cancer care staff given you an appointed breast care nurse and the nurses contact telephone number?  If they did phone her.

If not, you will have received a copy of the diagnosis letter sent to your GP.  Telephone the breast cancer unit number and ask to speak to a nurse.  You should be getting check ups and support.

There are times, perhaps, when you need to reassess past decisions.   Maybe speak to whichever medical team looks after your other health issues and talk about how any cancer treatment would affect that.

I have many other health issues but the cancer took priorities (my 2nd battle with my friend cancer - I crossed handbags at dawn back in 2013).

I would maybe reconsider having treatment - nothing ventured - nothing gained but talk to both your other health issues care team but definitely contact your breast cancer care unit at hospital to get your answers.

Again, gentle hugs to you x

Hi Dani 75650ad1 

I am sorry you are struggling with other health conditions and felt you couldn’t have any treatment for your breast cancer. I think it is the case that if you refuse all treatment you won’t be offered further scans and are discharged back to your GP, so the GP would be the first port of call to discuss progression and any palliative help that can be provided. 

Thank you for your reply. It was a bit of a mess tbh, I had to wait 17 weeks for biopsy, long story, see an allergy specialist first to make sure I could have the local, then a PALS complaint, just to get the biopsy done!

Consultant thought he'd spoken to my daughter, but it was the lovely PALS lady!! But he told me if I change my mind to go back to his secretary and make an appointment, I still don't want treatment, just want to see how it's progressed.

But I shall contact my GP I think. 

Thank you again for the advice.

Thank you for your reply also. 

Yes, I think there are two nurses, so I could contact them too.

I still don't want any treatment just to check progression. It was multiple things that made my decision, id had 20 diagnoses in 22 years and how treatment would impact everything. I live on my own and don't have any support, my daughter doesn't live near me either and cannot afford time off work to help. So a bit of a situation!

It became a bit of a I have to draw the line somewhere and this was it!

So sorry you've had to deal with it a second time too, sending you lots of love and big hugs.x