Terrified to start chemo and looking for some reassurance

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Hi I’m erpr+ and her2-. I had clear ct and bone scans and I’ve had masectomy and auxiliary clearance due to most my lymph nodes involved and a 10cm tumour Cry so I’m starting an intense and long chemo regimen (don’t have exact details yet) and need to meet oncologist m. My surgeon explained it would be soon and a long road to recovery but they’re still treating it to cure so I need to stay positive. I’m just terrified I’m going to be really poorly with the chemo and I’ve seen too many horror stories on social media. So I’m looking for reassurance it’s not as horrific as what I’ve seen- I know it’s going to be very difficult but hoping I’ll have good days to spend time with my young children 

  • Hello, so sorry you are feeling this awful way.You dont mention your age, but since you have young children i am guessing you are younger?I am also guessing you did not have an oncotype score test carried out due to most of lymph nodes involved? Remember that you are the patient and every Doctor will need to carry out a patient centered approach.My situation is very similar to yours and i am awaiting bone scan result.I too am terrified and havent had mascectomy yet.I have informed the surgeon that i dont want chemotherapy and he respects my wishes.As you have a hormone positive result, there are hormone blockers and CDK 4/6 drugs to consider.You can ask the Oncologists to show you the benefits of chemo and then make your decision. Please also have a look at PREDICT BREAST if you havent already.I hope this information is helpful

  • Hi bless you I am 4 years out had similar surgery and results. . 

    I like you was dreading chemo and to be honest it is not the best journey but it is different for everyone.

    I had x6 sessions 3 weeks apart first few days not too bad as had steroids and anti sickness meds which all helped. I was only sick once . The tiredness is a Biggie but if you pace yourself it really helps by week two was doing short dog walks and a few daily chores. Yes be prepared for side affects but any worries phone the helpline don't suffer in silence. It is do able and there are always things which can help you. Except help on the not so good days and shine through the good ones.

    Try to stay positive and always tell yourself it will get better day by day and you are doing all you can to beat this. Good luck take care and battle through it big hugs. Hearts

  • Thank you for this positivity Heart

  • I had my chemo first - from November to End May four years ago. Mastectomy after, then radiotherapy.

    my first half of chemo was a breeze. The second lot not so much - but it did the job. Sometimes it was very tiring but you just think - that’s another one done. Don’t try to do stuff that can wait you will get there !!

    Best of luck x