Hello everyone, I am new to this forum and am wondering if anyone can help me.
I was discussing with Invasive Lobular Cancer last year - had a mastectomy, followed by radiotherapy and then prescribed letrozole.
My Oncologist told me that it is not a matter if it comes back, more like when it comes back and where, yesterday they have offered me the opportunity to take Ribociclib (Kisqali) in conjunction with Letrozole . Can anybody tell me how they got on with this joint therapy, side effects you may have experienced and how you managed this, hair loss etc..
I am already experiencing huge fatigue issues, but managing to hold down a very busy full time job so wondering if fatigue increased with Kisqali.
thank you in advance for your help…
I have stiff joints but have found that the more I exercise the more I can exercise. In other words keeping mobile really helps even if you don’t want to get out of bed and walk. It tops up my energy levels if I go for a brisk walk.
Fatigue is an ongoing problem. I’m ready to fall asleep early in the evening but not too bad first thing and throughout the day.
Hair loss was a real issue at first but seems to have lessened over the 18 months I’ve been on the drug cocktail.
It seems as though everyone has different side effects and of different severity. I hope you have no or minimal issues.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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