Hiya
I went through chemo, surgery and radiotherapy last year. I have triple negative breast cancer, there was initially a tumour in my boob and a number of lymph nodes. After I completed my chemo last year my PET scan showed that despite most of the cancer being destroyed a new lymph node had lit up, which isn't supposed to happen. My surgeon was amazing and pulled everything out and radiotherapy did whatever that does. But my PET Scan at Christmas showed another 2 lymph nodes lit up, a rib and 4 small spots on my liver.
I'm having a different chemotherapy drug now, Trodelvy. Physically the side effects aren't too bad and I know my body can cope but my mind is struggling this time. I'm finding it really hard to push away those dark thoughts "what's the point of putting me and my family and kids through all of this again?" I so so so want it to work, I so so so want to live but I'm scared that this bastard is going to keep growing and I wonder how effective these drugs are on me when I'm not feeling that poorly.
I really need some positive stories from anyone who may have been here and survived.
The consultant says he still has lots of plans and this is not the end, but I have a nagging feeling we're just treading water until a miracle clinical trial appears and until then they're just giving whatever a go.
I have not had Trodelvy but it is my next line of treatment if needed - I also have metastatic TNBC but was able to get into remission from Pembrolizumab with Paclitaxel. Trodelvy is an immunotherapy / chemotherapy conjugate and seems to work well for people who can tolerate it. Wishing you all the best.
Thank you and so glad you got in to remission, it helps to hear positives like this!
Hi !
I have MTNBC - diagnosed last August tumours in liver ,spleen and various lymph nodes including in my neck
i am on Abraxane and Pembrolizumab , a scan just before Christmas showed I have had an excellent response- tumours shrinking ,lymph nodes back to normal size after three months . My oncologist has reduced the Abraxane a little as she said it has done the heavy lifting
I am lucky - minimal side effects - fatigue being the worse
But it’s hard mentally as I do know how hard it is to treat . I have been told there are two more lines of treatment after this ,if these stop working.
I am going to have six sessions with the Oncology Psychologists to help cope with my feelings- and my hospital has a team of metatastic nurses who I can ring at any time for any problems,I feel well supported by them
I do hope you will get the same ?
We need it !
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