Ribociclib, feeling like I've been written off

Do you recall whether the Oncologist said that your cancer is HER2 positive aswell? With HER2 +ve it is usual to have chemo before surgery to shrink the tumours before surgery. They can then decide what surgery you need. Very occasionally the tumours disappear altogether and no surgery is necessary - but that is rare.
The hormone therapy works on inhibiting the oestrogen and progesterone in your system as ER/PR positive BC is fuelled by these hormones. Ribociclib works alongside hormone therapy on reducing the likelihood of recurrence. Radiotherapy (if you need it) would happen after surgery. The standard for breast cancer is some form of surgery.
I would advise clarifying how your overall treatment plan is likely to pan out. Maybe ring your oncology nurse? They will be happy to help. It's all so overwhelming and difficult to get one's head around isn't it!

I'm HER negative, they've shelved surgery at present because of the chest lymph nodes being involved which ate inoperable. Every time I've been its all completely changed again so any questions I have prepared are no longer relevant. It really is so much to take in that I really don't feel like I know what's going on! Thank you for replying xx

Hi, I'm one of the champions here in this group and I'm sorry you find yourself without any real answers.   It might help to give the lovely folks here at MacMillan a call. They are available 8am to 8pm every day on 0800 808 0000 and I am sure they'd be able to give you some advice on what to do next to get a clearer picture and how to approach this with your medical team.  Best wishes 

Thank you. I'm going to ring the breast care nurse tomorrow for some clarity but will ring the above for some other support x