Hi I start Chemotherapy next Wednesday, lots to get organis bloods scans and ecg. They are hitting hard with 3 weekly dose of pembrolizumab pacilitaxel and carboplatin and then weekly pacilitaxel for 12 weeks, then 4 cycles of pembrolizumab and ec every 3 weeks for 4 rounds or 12 weeks The worst for me is I have to inject myself for 3 days every week
I told them I can't do it seeing if my gp can do anything, but they talk about curing me not managing so thats positive I guess.
Has anyone else got through this type of plan, any suggestions im asking my neighbour to do my injections as my husband is worse than me when it comes to needles.
They are also fitting a port so another terrifying experience
Please don't criticise me for being silly with needles its because of a traumatic experience in hospital as a child
I start tomorrow wish me luck, picc line in scared but hopefully
Hi
I had chemo similar to your six years ago and also had to have a round of injections every day for a week. I couldn't do them with and I managed to arrange for the district nurse to come in each day and do them for me
Maybe give your surgery a call to see if they can help with that.
All the best with your treatment.
Hi thanks for replying the surgery have said that the drugs are able to be self administered and they do not provide this service, ny neighbour has kindly agreed and another gp that lives on the road said she will help. I need to do this for 3 days every week
Hi that's good news.
Keep positive with your treatment. And having the port is not too bad so keep your spirits up.
Hello I’ve got through it and so will you. My neighbour did some of my injections until I realised the needles are so sharp that if you pinch an inch you can’t even feel it. You will smash it.
Advice - remember you may look ok and feel ok but your immune system is going to take a battering so stay away from crowds, small children and school germs if possible ( I caught chickenpox again and it landed me in hospital) . Be kind to yourself and the bad days will pass. Get out and walk as much. This helped me a lot.
I had a PIC line not a port but this was easy and I didn’t feel it.
best wishes to you for your treatment and before know know it you’ll be on your post radio immunotherapy like me xx
Hi
Having a port put in was slightly grim - I too am pretty squeamish - but I must say once it’s in it’s a complete godsend. So given you’ve got quite a lot to get through this might be the best option. Once it’s in it is no bother whatsoever and takes away virtually all the stress of them administering the drugs
Best wishes x
Hi
Yes I had a picc line too and it's very easy then to have the drugs. Keep strong you will get through it. And like the other poster said keep away from potential places to pick up anything while your immune system is low.
All the best to you let us know how you are getting on,
Thank you, today is a bad day woke up crying and can't stop i think its the time of year, had my hair cut and just panicked about the treatment will it work what if and all that, but like us all I will need to push on and just focus on day to day xx
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