Diagnosed today, grade 3 in breast and lymph nodes. Awaiting CT scan

So so sorry for your news iv recently had the same diagnosis and have been feeling the same the unknown Is scary big hugs and please reach out anytime it can feel lonely but there's so many here to help and listen xx

Thank you so much 

The unknown is a massive scary thing. My husband is really struggling and at the moment there isnt enough information to help reassure him. 

So sorry you're going through this too. Thank you so much for reaching out to me, it feels a very lonely place xx

Hi. I’m so sorry to hear this. I just wanted to provide you with some hope really. 

I had grade 3 breast cancer diagnosed Oct last year. Nearly one year on I’ve had mastectomy, lymph node removal operation (one sentinel node had cancer), 12 sessions of chemotherapy and now having 15 sessions of radiotherapy. I have a 5 year old and did not tell her, you don’t need to tell your children. I never had a day off work, I worked throughout operations and treatment (I work from home so appreciate it is easier). 

I had to have a full body CT scan also, I was so scared but all was clear and there is a good chance yours will be too. I know it’s hard but please try and be positive it really helps. I kept active throughout chemotherapy and was still doing the school runs with the breast drain attached to me. Anything is possible when you put your mind to it. 

Wishing you well and hope your CT scan goes well xx 

Hi

I was diagnosed with grade 3, 1 out of 3 lymph nodes had cancer in October 2024.

I know it's difficult but try not to panic just yet.

Even though it was in a lymph node mine had not spread. 

I had a masectomy, chemotherapy, radiotherapy and now taking some medications. 

Depending on the type of breast cancer you have and how far it has spread will determine your individual treatment plan.

I am now finished treatment, other than reconstruction. 

There is always a risk my cancer could come back, but i just wanted to share with you that's it's not always the worst case scenario, even when sometimes it looks that way.

Just take one step at a time.

Please feel free to reach out if you want to ask anything, if i can help i will.

Of course it's a huge shock we have told our kids who are teenagers but not straight away had to now as chemo is starting shorty I wish you all the best with your Journey reach out anytime x

Oh wow very similar to me, last Oct diagnosed, in one lymph node also, grade 3 also. 

Have you had any maintenance scans yet?

Thank you so very much for your reply. It's hard not jumping to worse case scenario isnt it, but your story very much gives me hope. 

I now have my CT scan booked for next week. 

That's so helpful to know how you managed with work and your children. I want to keep them protected from the world of cancer as best as I can and you definitely give me hope that is possible. 

Thank you for replying, I have been in a very dark place and needed to hear this xx

One step at a time. Thank you 

Really appreciate you taking the time to reply to me. I feel really scared but hearing stories like yours does give me hope. 

Thank you again xx

I have not had any maintenance scans yet.

My oncologist says that I probably won't get one, due to not hitting their criteria for it being necessary. 

My breast cancer was grade 3 invasive ducal carcinoma, I had a lump and calcifications throughout my breast .

Reoccurrence usually happens 5 years plus if it returns apparently. 

I have a 20% chance of it returning in the future.

I would like a scan for peace of mind.

My oncologist said they don’t like to scan too often as it can cause more problems. 

I have a mammogram and MRI scan next week. This has been booked through my genetics team.