Has anyone successfully requested a bilateral mastectomy?

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Hi,

I have recently been diagnosed with a recurrence of DCIS in my right breast. First time was in July 2024 and I had three operations following this, however no radiotherapy/tamoxifen was offered. I have since been diagnosed with a reoccurrence in the same breast in August 2025. I am 40 years old and a single parent to a two year old. The oncologist has recommended a mastectomy of my right breast but for peace of mind I feel I would rather have a double mastectomy now. I have been referred to genetics and have just returned my family history form. Has anyone had a similar experience? Has anyone been successful when requesting a double mastectomy when breast cancer is only evident in one breast? Thanks

  • Sorry, you are in this position, it must be very tough and yes, you just want/need to be there for your child. I completely get it.

    I had a double mastectomy, and I had to argue very hard for a double as there were only tumours in my right breast. My position was different to yours a) I was 70, b) it was covid, and c) I wanted it because the size of my breasts was very large 'h' cup.  I also had been denied any reconstruction. I think in part I succeeded because it was covid, and it was the easiest operation to perform (I was having to argue for any operation at all as surgery had been put on hold). Initially, it was a single mastectomy and a reduction on the other side. To get my way, I wrote to my MP, to Pals and to the chief executive. I would do this if you hit problems. Plus, if you can stress you want it for your mental well-being.

    Things to consider are, you will get reconstruction? Whereas at my age it did not matter too much, being flat would have affected me had I been younger. Also, if you have another child, you won't be able to breastfeed. With no breasts, there are no yearly mammograms, which means no warnings of any developments. I do worry that there could be some secondary growth that I won't know about until it is too late.

    You need an unbiased expert to listen to your concerns rather than a doctor delivering the party line.

    Lots and lots of luck and a long and happy life going forward with your daughter xxx